Co-design workshops with consortium and stakeholders
Abstract
The Equal‐Life project aims to investigate the combined effects of various exposures on children andadolescent mental health across different developmental stages. Important to this project is thecollaboration with stakeholders This deliverable is a representation of all activities in five different meetings. Each meeting wasstructured according to different themes. The stakeholder fora in Ljubljana, Milano and in Helsinkiwere structured according to different interactive sessions. Different working methods were used. Arange of potential outcomes were addressed.
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1 Equal-Life – Deliverable 8.4 Project title: Early Environmental quality and life-course mental health effects Project Number: 874724 Project Acronym: Equal-Life Work package 8 - Deliverable D8.4 Co-design workshops with consortium and stakeholders HISTORY OF CHANGES Version Publication date Change 1.0 20.12.2022 First draft 2.0 13.02.2023 More introduction, definitions, restructures annexes 3.0 23.03.2023 Rewritten into a report format 4.0 15.12.2023 Information from 2023 added 5.0 31.12.2023 Final Ref. Ares(2023)8897295 - 29/12/2023
H2020 program Grant agreement numbers 874724 (Equal-Life) Project start date: Jan 1st 2020 Duration: 60 months Project Coordinator: Irene van Kamp (RIVM) WP (number and title) Equal-Life WP8 Stakeholder involvement and intervention development Deliverable Number Equal-Life D8.4 Deliverable Title Co-design workshops with consortium and stakeholders Due date 31. 12. 2022 Actual date 31. 12. 2023 Dissemination Level Public Lead beneficiary INCHES Responsible author(s) and beneficiary acronym: Peter van den Hazel –INCHES, Miriam Weber – City of Utrecht, Sonja Jeram –NIJZ, Sammie Jansen – RIVM, Roos Teeuwen - TU Delft, Achilleas Psyllidis – TU Delft, Gordana Ristovska – IJZERM, Sarah Benz – ZEUS, Julia Kuhlmann – ZEUS, Anna Sandionigi – Quantia, Marco Balduini – Quantia, Dirk Schreckenberg – ZEUS, Maddie White – UB, Lena GudiMindermann – UB, Jenny Ahrens – UB Work package/task: WP8 / Task 8.1 Document status: Updated final Confidentiality: public Key words: Stakeholder, Co-design, forum, science-policy interface E-mail / phone responsible authors Peter van den Hazel [email protected] Miriam Weber [email protected] Co-authors Sonja Jeram [email protected] Sammie Jansen [email protected] Roos Teeuwen [email protected] Achilleas Psyllidis [email protected]
3 Gordana Ristovska [email protected] Sarah Benz [email protected] Julia Kuhlmann kuhlman[email protected] Anna Sandionigi [email protected] Marco Balduini [email protected] Dirk Schreckenberg [email protected] Maddie White [email protected] Lena Gudi-Mindermann [email protected] Reviewers Maud Dohmen [email protected] Irene van Kamp [email protected]
4 Contents Summary................................................................................................................................................6 Introduction.....................................................................................................................................7 StakeholderforumLjubljana.........................................................................................................10 2.1Theme1:Scaleonwhichresultsshouldfocus......................................................................10 2.2Theme2:Includingtheimpactofenvironmentalfactorsonmentalhealthfactorsinall policymaking.....................................................................................................................................11 2.3Theme3:Settingupeffectiveyouthparticipation...............................................................11 2.4Mentalhealthplans...............................................................................................................12 Co‐designworkshopSkopje..........................................................................................................12 3.1Theme1:Co‐designtools......................................................................................................13 3.2Theme2:WorkingonapplicationoftoolsbasedonEqual‐liferesults................................14 3.3Theme3:Workingtowardstranslationofscientificresults.................................................14 3.4Theme4:Interventions‘bridgingthegap’asatooltoimprovehealthforall.....................15 3.5Theme5:Spectrumofprevention........................................................................................16 3.6Theme6:Whatarethenextsteps?......................................................................................16 StakeholderforumMilano............................................................................................................16 4.1Equal‐Lifeguidebookandtoolbox.........................................................................................17 4.2WorldcafédiscussionsonEqual‐Lifepresentations.............................................................18 4.3Usingalogicmodelasatooltoencouragethinkingaboutsocialinequalitiesinurban planninginterventions......................................................................................................................18 4.4Evaluatingchildren’saccesstopublicoutdoorplayspace...................................................19 4.5Policyrecommendationperspectives...................................................................................20 4.7Whatarethenextsteps?......................................................................................................20 5Co‐designworkshopComo............................................................................................................20 6StakeholderforumHelsinki...........................................................................................................24 7Conclusion/Nextsteps.................................................................................................................25 8Partners/Equal‐Lifecontactinformation.....................................................................................29 9Annexes.........................................................................................................................................30 Annex1AdditionalnotesonworkshopinLjubljana.............................................................................30 Annex2Co‐designworkshopSkopje....................................................................................................32 Annex3StakeholderforuminMilano..................................................................................................36
5 Annex4Co‐designworkshopinComo..................................................................................................46 Annex5StakeholderforuminHelsinki.................................................................................................50 Annex6Someexamplesofusedpersonas...........................................................................................56 Annex7Co‐designprocesspresentation..............................................................................................58 Annex8Workingonapplicationoftools.............................................................................................61 Annex9researchquestionsusedinComoco‐designworkshop..........................................................63
6 Summary TheEqual‐Lifeprojectaimstoinvestigatethecombinedeffectsofvariousexposuresonchildrenand adolescentmentalhealthacrossdifferentdevelopmentalstages.Importanttothisprojectisthe collaborationwithstakeholders. Thisdeliverableisarepresentationofallactivitiesinfivedifferentmeetings.Eachmeetingwas structuredaccordingtodifferentthemes.ThestakeholderforainLjubljana,MilanoandinHelsinki werestructuredaccordingtodifferentinteractivesessions.Differentworkingmethodswereused.A rangeofpotentialoutcomeswereaddressed. Theoutcomesoftheco‐designworkshopsandstakeholderforasignifyaimportantsteptoward developingasetofpolicyimplementations,atoolboxandguidebook.Theseoutcomesnotonly addressthecomplexitiesofexposomedatabutalsoensuresitspracticalapplicabilityindiverse settings.Thecollaborativeandinclusivenatureofthiseffortreflectsacommitmenttoadvancingour understandingoftheexposome'simpactonchildmentalhealthandcognitivedevelopment.The findingsprovideafoundationforinformedpolicydecisions,promotingtheintegrationofthistoolbox intorelevantresearch,healthcare,andeducationalinitiatives. StakeholdersareinterestedinpracticalimplicationsofEqual‐Liferesults.Stakeholdersregardthe Equal‐LifetoolboxasasetoftoolsthathelpsthoseinterestedintheEqual‐Lifeproject(atvarious levels)toexplore,understand,andreusetheresultingoutcomes.TheEqual‐Lifeguidebookshould accompanythetoolboxasaguideforpracticaluseandhelpconceptualizewhatisbeingpresented.It shouldassistthestakeholderstounderstandtheconnectionsbetweenthemultipleresultsdisplayed andwhattheymeanforoptionsofinterventions. Itisintheinterestofstakeholdersthatresultsshowupoptionsofinterventions.Indifferentcountries (andregions,communities)powerandfinancesareondifferentscales.Therefore,scientific data/results,andrecommendationsforinterventionsshouldbecategorizedbythesescales. Resultsandrecommendationsshouldbepresentedinalanguagethatisunderstoodbystakeholders. Duetothedifferentlanguages,goals,motivations,andsenseofurgency,thecommunicationbetween scientistsandstakeholdersisacomplextask.Forthescientificcommunity,nearnesstodecision‐ makersisimportant.Scientistsshouldmakeuseofcommunicationexpertswereapplicableinorderto communicatetheirdataresultsandrecommendations.
7 Introduction Thetask“Co‐designworkshopswithconsortiumandstakeholders”relatedtoD8.4hastheobjective toestablishabi‐directionaldialoguebetweentheEqual‐Lifeprojectand(inter)nationalpolicymakers to1)translateprojectresultsintoeffectivechildrenhealthpoliciesand2)injectknowledgeaboutbest practicesandhealthpoliciesintotheproject.Thistaskensuresthatthegeneratedknowledge(on exposome,mechanisms,andhealtheffects)isdevelopedinlinewiththeneedsofthebroadersociety, andthatknowledgeoftheinvolved(publicandprivate)stakeholderswillhelptointerprettheresults. Thisscience‐policyinteractiongivesabetterunderstandingofthesocietalimpactandrelevanceofthe Equal‐Liferesearchbothforthescientistswithintheprojectasforthestakeholders.Wehaveidentified keystakeholder(policymakers,regulatorsandresearchnetworks),andsetupaformalco‐design workshopandtwostakeholderforaandestablishedregularinteractionbetweenscientistsand stakeholders. Inthe36monthsreviewstherequestedactionwastoupdatetheGanntchartandtheDoA.Thefocus ofthedeliverablehasbeenadjustedwithreferencestopreliminaryresults.Thesewereaddressedin thelasttwostakeholdermeetings.Additionally,thedeliverablehasbeengivenexamplesoftheco‐ designprocessandthedescriptionofexpectedoutcomes.Thesewererelatedtothecontextandthe requirementsofthetoolboxandguidebook.ThesehadstronglinkstotheworkofWP9.ThisD8.4was previouslysubmittedinApril2023,butnowupdatedwithinformationfromtwoadditionalstakeholder meetings.Anotherupdateisexpectedinautumn2024. Thisdeliverableisinaformatofademonstrator.Itisarepresentationofallactivitiesinfivedifferent meetings.Eachmeetingwasstructuredaccordingtodifferentthemes.Thestakeholderforain Ljubljana,MilanoandinHelsinkiwerestructuredaccordingtodifferentinteractivesessions. StakeholderforuminLjubljana,March7‐8,2022 Co‐designworkshopinSkopje,September14‐15,2022 StakeholderforuminMilan,November16‐17,2022 Co‐designworkshopinComo,June29‐30,2023 StakeholderforuminHelsinkiSeptember7‐8,2023 Co‐designworkshop Co‐designistheactofcreatinginteractionwithstakeholders(policymakers,end‐users)specifically withinadesigndevelopmentprocesstoensurethattheresultsmeettheirneedsandareusable.Its aimistocreatesomethingnotonlyforpeople,butalsowiththem.Stakeholderscanbecomecreators ofaproductbeingactivelyinvolvedinthecreationprocess.Co‐designisoftenatransdisciplinary process.Theresultcanbeareport(guidebook,guideline)oraproduct.InEqual‐Lifetheco‐designis atooltoenablestakeholderstouseEqual‐Liferesultsforpolicymakingoreventodraftinterventions. Weconductedoneco‐designworkshopinSkopje(seechapter3). Stakeholderforum
8 StakeholderForummeansaplatformopentorepresentativesofinstitutions,national,regionaland localauthorities,organisedinterestsandindividualentitiesfromdifferentdomains,highereducation, research,associations,civilsocietyandclusterorganisations,aswellasotherinterestedpartiesfrom acrossaselectedknowledgeorpolicyfocus. Thesetupoftheworkprocessofco‐designworkshopsorstakeholderforumissimilar.Theforumaims moreatsendinginformationbetweentheparticipants.Theco‐designworkshopaimsatproducing contentrelatedtotheproductsthatareseenasresultoftheproject. Herewedescribetheworkingprocessofthestakeholderforaandtheco‐designworkshops.This workingprocessispresentedasalist.Thisisfollowedbyadescriptionoftheoutcomesofthe collaborativeeffortbetweentheEqual‐Lifepartnersandthestakeholders.Thisisalsopresentedina list. Outlineoftheworkingprocess Theprocessoftheco‐designworkshopandstakeholderforumusesastructuredapproach.This approachfacilitatesacodesignworkshop/forumaimedatcollaborativelydeveloping1)inputfor policyrecommendations;2)atoolorguidebookwithsupportfromdiversestakeholders.Theprocess emphasizesopencommunication,activeparticipation,anditerativefeedbacktoensureawell‐ roundedandinclusivefinalproduct.Thefollowingstepscanbeidentifiedandhavebeenused. 1.DefiningObjectivesandScope:Theworkshopbeginswithacleararticulationofitspurposeand goals.Thefocusisondefiningthescopeofthetoolorguidebook,establishingboundariestoguide thecollaborativeprocess. 2.IdentifyingStakeholders:Stakeholders,includingend‐users,subjectmatterexperts,anddecision‐ makers,areidentifiedandinvitedtoparticipate.Thegoalistoensureadiverserepresentationthat capturesabroadrangeofperspectives. 3.Pre‐workshopPreparation:Participantsreceiverelevantinformationbeforetheworkshop,along withmaterialsorresourcestoreview.Acommunicationplatformisestablishedtofacilitateongoing collaborationamongstakeholders. 4.WorkshopAgenda:Adetailedagendaoutlinestheworkshopactivities,incorporating introductions,icebreakers,andspecificdesignsessions.Timeisallocatedforbrainstorming, prototyping,andfeedbacksessions. 5.FacilitationTechniques:Facilitationtechniquesareemployedtoencourageopencommunication, activeparticipation,andequalcontribution.Thefacilitatorfostersacollaborativeandinclusive environmentwhereallvoicesareheard. 6.Brainstorming:Structuredbrainstormingsessionsareconductedtogenerateideas.Techniques suchasmindmappingoraffinitydiagramsareemployed,andparticipantsareencouragedtoshare theirperspectivesandinsights. 7.Prototyping:Thedesignisbrokendownintosmallercomponents,andparticipantsworkon creatingprototypesordraftsofthetoolorguidebook.Collaborativetoolsorphysicalmaterialsare usedtovisualizeideas. 8.IterativeFeedback:Regularfeedbacksessionsarefacilitated,allowingstakeholderstoreviewand provideinputonprototypesanddraftdocuments.Constructivecriticismisencouraged,andconcerns areaddressedtorefinethedesign.
9 9.Decision‐Making:Facilitateddecision‐makingsessionshelpprioritizefeatures,content,ordesign elements.Techniqueslikedotvotingorconsensusbuildingareusedtoreachagreementsamong stakeholders. 10.Documentation:Outcomes,decisions,andchangesmadeduringtheworkshoparethoroughly documented.Aroadmaporactionplaniscreatedforthenextstepsinthedevelopmentprocess. 11.Follow‐upandImplementation:Stakeholdersarekeptinformedabouttheworkshopoutcomes. Agreed‐upondesignchangesareimplemented,andstakeholdersarecontinuouslyinvolvedinthe developmentprocess. 12.Communication:Ongoingcommunicationismaintainedwithstakeholdersthroughoutthe developmentprocess.Regularupdatesandinvolvementinfutureiterationsensuresustained collaboration. Byfollowingthesesteps,thecodesignprocessbecameadynamicandinclusivejourney,harnessing thecollectivecreativityandexpertiseofstakeholderstodevelopavaluableandwell‐receivedsteps towardspolicyimplications,atoolorguidebook. Outlineofthepotentialoutcomes Weaddressedinthedifferentmeetingsthefollowingoutcomes.Thesedemonstratethesignificance andpotentialimpactofthiscollaborativeefforttoimprovetheworkofEqual‐Life. 1.User‐DefinedRequirementsforthepolicydevelopmentandthetoolbox:Stakeholders,including researchers,healthcareprofessionals,non‐governmentalorganisations,andpolicymakers, participateactivelyindefiningspecificrequirementsforpolicyimplementations,thetoolboxand guidebook. 2.PersonaProfiles:Detailedpersonaprofilesreflectthevariousstakeholderswhowillinteractwith theoutcomesofEqual‐Life.Thesepersonasprovideanuancedunderstandingofuserperspectives, guidingthedesignprocesstobeinclusiveandusercentric. 3.ExposomeMappingandVisualizationStrategies:Stakeholderscontributetothedevelopmentof effectiveexposomemappingandvisualizationstrategieswithinthetoolbox.Thisoutcomeensures thatthecomplexdatarelatedtoexposomefactorsandtheirimpactonchildmentalhealthcanbe communicatedinacomprehensibleandinsightfulmanner. 4.Scopeofimpactassessment:Stakeholderscontributetoidentifywhichkindsofimpactassessment areusefultoincorporateintotheirdailypractice.Thisalsoincludesdatasharing. 5.UseCaseScenarios:Collaborativelygeneratedusecasescenariosillustratethepractical applicationsofpoliciesandtheuseofthetoolboxinreal‐worldsituations.Thesescenariosnotonly refinethefunctionalityofthetoolboxbutalsodemonstrateitspotentialvalueacrossdiverse contexts.Casestudiespresentedbystakeholdersarepartofthisoutcome. 6.FeaturePrioritization:Stakeholdersprioritizeexpectationsoffuturepoliciesandthetoolbox featuresbasedontheirperceivedimportance.Thisprioritizationprocessensuresthatthetoolbox focusesoncriticalfunctionalities,aligningcloselywiththeneedsofusersandmaximizingitsimpact. 7.PrototypesandDemonstrator:Prototypesanddemonstratorofthetoolboxaredeveloped, incorporatingtheidentifiedfeaturesanddesignelements.Stakeholdersprovidevaluablefeedback onusabilityandeffectiveness,facilitatinganiterativeimprovementprocess.
16 Thissessionaddresseditem5theuseofcasescenarios.Thefocusofthissessionwasonthesocial exposome.Thiswasregardedasveryimportantbythestakeholders.Additionalnotesonthissession canbefoundinAnnex2. 3.5Theme5:Spectrumofprevention Thiswasanopensessiontobrainstormonwhatkindofpreventionshouldbeonthepolicyagenda. Also,thequestionwasposedonwhattheexpectedtrendsareinchildren'smentalhealthandcognitive development.And:Whycanresearchbebeneficialtochangepolicy?Whatstudiesandtoolsshould beused? Theparticipantsprovidedsuggestionsonhowtodeveloppreventionstrategies.Seedetailsoftheir answersinAnnex2. Thissessionrelatestotheitemofmakingaworkplanforimplementation(item10)and featuringprioritization(item6).Thesuggestionsshowabroadrangeoftopics.Theseshould beconsiderednfurtherstepsintheEqual‐Lifework.Additionalnotesonthissessioncanbe foundinAnnex2. 3.6Theme6:Whatarethenextsteps? Theparticipants,bothstakeholderandconsortiummembers,werepositiveabouttheworkshop.They thoughtitwouldbeveryusefultocontinuethiskindofwork.Suggestionsweregivenonstrengthening thenetworkofstakeholders.Communicationtoallstakeholders.Sharecommunicationstrategy.How isthecommunicationflowtoprofessionals?WHO,EU,ministriesofhealth,regionsetc.Have stakeholderstalkingabouttheirwork.CreateandsharemoreconcreteexamplesfromWPs.Rebuilding thedemonstrator.MoreandbetterconnectionstootherWPs.Thereisaneedtoknowwhatisgoing on.Participantsneedafewpreliminaryresultsoroutputsforinvolvingstakeholders.Involveyouthin allWPs,asstakeholders,wearetalkingabouttheirlives.Aswellasparents.Stakeholdercommunity building,informaboutwhoiscomingtothenextmeeting.UseLinkedIn.Regularupdatesonthe (whole)project,likeanewsletter. Thissessionshowedtheimportanceofdevelopingacommunicationstrategy(item11). StakeholderforumMilano Introduction TheMilanstakeholderforumaimedtobringtogetherprofessionalsinthedomainsofmentalhealth andenvironmentalhealthtodiscuss1)exposuretothephysicalandsocialenvironmentofchildren;2) theuseoftoolsasastrategytobridgethescienceandpolicydomain;and3)usingthefutureEqual‐ Lifeprojectresultsforimplementingpoliciesorinterventionstoimprovechildren’senvironmentsand
17 mentalhealth.17stakeholderswere(part‐time)present,togetherwith23researchers(5ofthem online)fromtheEqual‐Lifeproject. TheforumtookplaceNovember16‐17,2022,attheStarhotelRitzinMilan,Italy.Thefirstdaywas dedicatedtopresentationsonworkfromEqual‐Liferesearchersandstakeholders,followedbyworld cafédiscussions.Thefirstdaywasclosedwithaworkshoponthelogicmodelthatisdevelopedwithin Equal‐Lifeasatooltoencouragethinkingaboutsocialinequalitiesinurbanplanninginterventions. Theseconddayopenedwithaworkshoponhowtoevaluatechildren’saccesstopublicoutdoorplay space,researchthatisalsoperformedwithinEqual‐Life.Therestofthedaywasdedicatedtodiscussing policyrecommendationsandusefulinterventionsintheenvironmentalmentalhealthdomain. Thehands‐onworkshopsprovidedtheEqual‐Lifeprojectresearcherswithvaluableinputtoimprove thepresentedtools.Someconclusions: StakeholderswanttohavearoleinEqual‐Life,forexampleinpilotingEqual‐Life(draft) outcomes(knowledgeandtools)andinco‐designingoforcommentingonEqual‐Life deliverables. InteractionwithEqual‐Liferesearchersandinvolvementofstakeholdersin(specific)work (packages)needtobefacilitatedandincreased,forexamplein(in‐person)meetingsaswellas inone‐to‐onesettingsandonlineworkinggroups. Thisstakeholderforumaddressedthefollowingitemsofthelistofoutcomes. - User‐DefinedRequirementsforthepolicydevelopmentandthetoolbox - ExposomeMappingandVisualizationStrategies - FeaturePrioritization - Scopeofimpactassessment - PrototypesandDemonstrator - FeedbackandIterativeImprovementandexpectations.Thisisalsoappliedforthe policyimplementationprocess. - DocumentationandKnowledgeSharing - WorkPlanforImplementation - CommunicationStrategy Contentofthemeeting ThreepresentationswereprovidedbyEqual‐Liferesearcherstoprovideanoverviewoftheproject. SeeformoreinformationtheDeliverable8.2. 4.1Equal‐Lifeguidebookandtoolbox Theguidebookandtoolboxsessionwereaparallelactivitythatranthroughouttheforum.Itwas introducedbyashortpresentationthatexplainedtheintentandcurrentdefinitionofwhatwecallthe toolboxandguidebook.Thedefinitionsareundercontinuousdiscussion.Sincethefirststakeholder meetinginMarch2022(Ljubljana,Slovenia)theresponsiblepartnershavebeenrequestingfeedback frominternal(Equal‐Life)andexternal(stakeholders)partners,whichispartofaniterativeprocess. Thecurrentunderstandingofthetoolboxandguidebookareasfollows:
18 Thetoolboxshouldbeatool,orsetoftools,whichhelpsthoseinterestedintheEqual‐Life project(atvariouslevels)toexplore,understand,andreusetheresultingoutcomes. Theguidebookshouldaccompanythetoolboxasaguidetopracticaluseandhelp conceptualizewhatisbeingpresented.Itshouldassisttheusertounderstandtheconnections betweenthemultipleresultsdisplayed. Theinputreceivedwassimilartothecollectedideasinthepreviousstakeholdermeetingsasitfocuses onthedevelopmentoftoolsthatcanallowguidingandfacilitatedaccesstotheprojectcontentssuch asdeliverables,researchquestions,andfeaturesconsideredintheanalysis.Stronginterestwasalso expressedinexplanationsandtrainingonanalysismethodsandsoftwaredevelopedduringthe project,withconsequentinterestindedicatedtrainingsessions. Thestakeholders’inputwashelpfulfortheoutcomesofPrototypingthetoolbox. 4.2 WorldcafédiscussionsonEqual‐Lifepresentations ThesectiondescribestheinputgivenbysomePIsoftheEqual‐Lifeproject,andalsobysome stakeholders.TheinteractionwiththestakeholdersprovidedinformationontheFeedbackand IterativeImprovementandexpectations,FeaturePrioritizationandonDocumentationandknowledge sharing. WeusedtheWorldcafémethod.Inannex3areshortdescriptionsofthedifferentsessions. 4.3Usingalogicmodelasatooltoencouragethinkingaboutsocialinequalitiesin urbanplanninginterventions ForthisworkshopsessionranbyJennyAhrens(UB),thegoalwastoevaluatetheapplicabilityofthe LogicModelforEquityAssessmentusinganexemplaryinterventiononbicycleinfrastructurebasedon theworkshopparticipants’expertise.Todothis,fivegroupswereformed,andeachgroupfocussed onthethreemainpartsofanintervention:Planning–Implementation–Evaluation. Duringthediscussion,thefollowingthreequestionswereourguidingquestions: Whattoolssimilartothelogicmodelareyoucurrentlyusingatwork(e.g.,guidingquestions, frameworks,othermodels)? Canyouseethelogicmodelbeingusedinyourwork? Whatcouldbeaddedorchangedinordertomakethelogicmodelamoreusefultool? Asforthedifferentthreephases,itwasnotedthatanimpactassessmentwouldbevaluablewithin theplanningphaseandthatevaluationneedstobeimplementedwithinallphases. ThemaintakeawayfromthediscussionwithstakeholdersandmembersofEqual‐Lifewasthatitneeds tobemadeveryclearthatthisLogicModelforEquityAssessmentisnotanotherprocess‐modelbutis aboutassessingtheequityaspectsinthethreemainphasesofanintervention.Ideastoimprovethis wastoemphasizethiseveninthevisualmodelbyusing“triggerwords”.
19 ThissessionrelatedtotheScopeofimpactassessment.Basedonthefeedbackthelogicmodelcould beimproved. 4.4Evaluatingchildren’saccesstopublicoutdoorplayspace InthesessiononEvaluatingChildren’sAccesstoPublicOutdoorPlaySpace,RoosTeeuwenand AchilleasPsyllidis(TUDelft)collectedknowledgefromtheEqual‐Lifestakeholdersinaninteractive workshopsession.TUDelftaimstomeasurechildren’saccesstoplayspacesincities,tobeusedfor theenrichmentoftheEqual‐Lifecohortandschoolstudydatasets.Thegoalofthissessionwas threefold:tocollaborativelyidentifythefactorsthatlimitorpromotechildren’saccesstoplayspace; toconnectthesefactorstoelementsintheurbanenvironment;andtoassessthelatestwork‐in‐ progressapproachofTUDelftinmeasuringchildren’saccesstoplayspace. First,RT(TUD)introducedthetopictothestakeholdersandprovidedthemwithashortoverviewof thetheorythattheworkshopwasbuiltupon.Then,stakeholderswereaskedtocontributewith suggestionsoffactorsthatlimitorthatpromotechildren’saccesstoplayspaceaskeywords,followed byabriefplenarydiscussionofthemostprevalentlimiting(i.e.,lackofsafetyorsecurity,traffic,and lackofplacessuitingageormultiplegenerationsofusers)andpromotingfactors(i.e.,safety,other children,informalplacestoplay,andequipmentforchildrenwithreducedabilities). Second,bothstakeholdersandEqual‐Lifeparticipantssplitinto6groups,eachattheirowntable,to discusschildren’saccessibilityinaspecificurbancase:3tablesfocusedonLjubljana,Slovenia,and3 tablesonMilan,Italy.ParticipantsfamiliarwitheitherMilanorLjubljanawerepresentedwiththe correspondingcity,whileotherswerespreadovertablestoensurevarietyinexpertiseand geographicalbackground.Ateachtable,anEqual‐Lifemoderatorguidedtheprocess.Participants discussedphotosandmapsofthecityathandandpinpointedwhatcouldlimitorpromotechildrento accessplayspaces. Third,participantswerepresentedwithamapoverlayontopofthemapofthesecondround,made byTUDelfttomodelchildren’saccesstoplayspace.Specifically,theseoverlaysshowedplacesthey identifiedthatmayattractchildren’splay(i.e.,playgroundsandsmallparks),orthatmaybeabarrier tochildrenwhowanttoaccessaspacetoplayinthecity(i.e.,transportandnaturalinfrastructures). Participantsdiscussedtowhatextenttheyagreedwiththebarriersandplacespresentedonthemaps, aswellaswhatshouldbeomittedoraddedtobetterreflectpractice. Throughoutthesecondandthirdrounds,participantscontributedtheirknowledgebymeansof annotations,drawings,andstickynotes.Participantsalsoelaboratedonexperiencesfromtheirown lifeortown,whichwerecapturedinaudiorecordings.TUDelftwillusethesetounderstandthe potentialandlimitationsofusingsuchdatatomodelchildren’saccesstoplayspaceintheEqual‐Life project. Preliminarytake‐awaymessagesfromtheparticipantstoTUDinclude:Thesizeandshapeofparks, timeofday,movementtrajectories,andsurroundinglanduseandactivitiesmatterwhenassessing children’saccesstoplayspace;Goodqualityinfrastructureisimportant;Andknowledgefromlocal expertsorchildreniscrucialtogetacompleteunderstandingofchildren’saccesstopublicoutdoor playspaceintheurbanenvironmentathand.
20 ThisoutputofthissessionwillenableTUDtoimprovetheExposomeMappingandVisualization Strategies. 4.5Policyrecommendationperspectives INCHES(PvdHl)introducedthesessionwithashortpresentationontheecologicaldoughnutmodel andtheDPSIRmodel.ThedoughnutmodelbyKateRaworth(2012)isavisualframeworkfor sustainabledevelopment,combiningtheconceptofplanetaryboundarieswiththecomplementary conceptofsocialboundaries.TheDPSIRmodel(drivers,pressures,state,impact,andresponsemodel ofintervention)isacausalframeworkfordescribingtheinteractionsbetweensocietyandthe environment. Thesemodelsweredevelopedinthecontextofplanetaryhealthandtheenvironmentalsciences,to describeandclarifycomplexsystems.Theparticipantswereinvitedtothinkofapplyinganadapted versionoftheDPSIRmodeltothecontextofchildren’smentalhealthandcognitivedevelopment.The resultsfromthediscussionsondrivers,pressures,status,mediators,andoutcomesareonthenext page. Thissessionhadtheaimedtogivethestakeholdersinputforfuturestepsinimplementationofpolicies andinterventions.Thisrelatestodocumentationandknowledgesharing. 4.7Whatarethenextsteps? Inthisfinalsession,thestakeholdersandEqual‐Liferesearcherssplitintotwoseparategroups.The stakeholdersreflectedonthetipsandtopsofthestakeholderforumfromtheirperspective.TheEqual‐ Liferesearchersdiscussednextstepstotakeinthestakeholderactivities. 5 Co‐designworkshopComo Aco‐designworkshopinComo,Italywasheldonthe29thand30thofJune2023.Thisworkshop discussedtheprogressandinteractionwithstakeholdersintheEqual‐Lifeproject.Thebestwaysof usingtheexpectedEqual‐Lifeprojectresultsforimplementingpoliciesorinterventionswere discussed.Howshouldwedesignthetools?HowtoincorporatethegenerateddatafromEqual‐Lifein thedesignofpolicies?Whatareyoutheneedsasstakeholdersworkinginthedomainofchildren’s mentalhealth,cognitivedevelopmenttolinkEqual‐Liferesultstotheworkthatstakeholdersdo?How canscienceandcivilsocietyorganisationsbestcooperate? Theworkshopwasaliveworkshop.Atotalof15personsattended(live12,3online.Theworkshop tookplaceatthePolitenicoinComo. Sessionswereconductedonhowtoreadframeworksanddifferentconceptualmodelsonexposures, mediators,settingsandlifecoursestages.Anothersessiondiscussedtheuseoftoolsandhowthese
21 shouldbedesigned.Anothersessiondealtwiththereflectionontheprioritizationofresearch questionsofEqual‐Lifeandtheirlinktodailypracticeofthestakeholders.Asessiononsocialexposome lookedattheintegrationofsocialandphysicaldomain.Thiswasconsideredasveryimportantbythe stakeholders.Twofinalsessionswereconductedon1)Dataandharmonization;and2)Conceptual modellingwithsemantictechnologies. Introductionpresentationonconceptualmodels PresentationWP1(DS‐PartnerZEUS):formulatetheoriesandmechanisms‐>frameworkanddifferent conceptualmodels(exposures,mediators,settings,lifecoursestages). Somementionedhighlights: Socialpracticesaffecttheimpact,aswellassocialandphysicalenvironments.Translatedintoresearch questions,whichare“tested’inin‐depthstudies(sleepstudyandpreschoolstudy)andincohort studies,includingenrichmentofthedata.Resultswillbeavailableendof2023/beginningof2024 (externally). Anidentificationofkeyexposureswithinthehumanexposome;thiscouldforexamplebeexposures likeaccesstoplayareas,noiselevelsduringsleep,andqualityofinteractionbetweenchildandparent, dependinguponthehealthoutcomes. Discussionontheconceptofmediator,suchassleepandstress.Howdostakeholdersusethat? Suggestedbystakeholder:Itisan‘outcome’thatisanentrancepointforunpicking/understanding what’sbehindthis.Aninventoryonstressamongparentsnowincludesaquestiononwhetherone mindsexperiencingstress.Povertyisanessentialfactor,themainfactor,aswell.Povertyispartofthe socialexposome.Housingincombinationwithpoverty. PovertyisnotusedasaterminEqual‐Lifebutcanbefoundinthe‘inequalities’perspectiveofthe research. Addinganothermediator,suchasaccessto(social/health)servicescouldbeconsidered? ThissessionprovidedinsightsonUser‐DefinedRequirementsforthepolicydevelopmentandthe toolbox,theExposomeMappingandVisualizationStrategies,theScopeofimpactassessment (includingdatasharing),thePrototypesandDemonstrator(relatedtothetoolbox),Feedbackand IterativeImprovementandexpectations.Thisisalsoappliedforthescience‐policyimplementation process.FeaturePrioritizationandDocumentationandKnowledgeSharing. WorkPlanforImplementation CommunicationStrategy Sessionontools Makeadistinctionbetweentypesofstakeholders.Whoareyouaddressing?Informationfordecision making.(Inter)nationallevel,citylevel,communitylevelandsettingslevel.Makethetoolaccording tosimplicityprinciples. Seefordetailsonthestakeholderreflectionsannex4. Thissessionprovidedinformationtodeveloptheprototypeanddemonstratortowardsatoolbox.
22 SessiononresearchquestionsmoderatedbyINCHES Tableswiththeresearchquestionsconsideredintheprojectwerepresentedinthediscussion.The questionshadbeensentinadvancetostakeholdersinordertohavetimetoreadandunderstand them. Seefordetailsonthestakeholderreflectionsannex4. Seeannex9fortableswithresearchquestions.Initialusefornamesofstakeholders. SessiononTranslationofscientificresultsintotoolsmoderatedbyQuantia Theinsightsfromtheco‐creationworkshopinComoprovidedavaluableunderstandingof howstakeholdersutilizetoolsintheirprofessionalenvironmentsandofferedfeedbackon thedemonstrator'sadvantagesanddisadvantages. MaininterestwasseeninalloutputsfromWP4andlowinterestinWP5forstakeholders,exceptfor themaps(andhigherforresearchers). Relatedtothedevelopmentofatoolboxseveralsuggestionswereprovided.Stakeholdersmentioned preferredformats:guidelines,visuals,‘easy’website,policybrief,communicationmaterial, interactivewebpages. Action:raiseimportanceofdiscussingpreliminaryresultswithstakeholdersduringupcomingcatch‐ upsession.Researchersneedtolearntocommunicatewith/tonon‐academics.Makethelanguage workfortheend‐user. Thissessionprovidedinputfortheworkplanonimplementationandinformationtodevelopthe prototypeanddemonstratortowardsatoolbox. SessiononsocialexposomemoderatedbyUB,INCHESandNIJZ Sessionstartedwithanexplanationaboutthesocialexposome. Socialexposome:anovelconceptualframework.Goalarealisticportrayalofthecomplexsocial environment.Characteristicsoftheframework:Multidimensionality,reciprocityandtimingand continuity.Seepaperat: https://www.sciencedirect.com/science/article/pii/S0013935123012896?via%3Dihub ThreepathwaysareidentifiedinthemodeldevelopedbyUB:empowerment,resilienceand susceptibilityorvulnerability,andembodimentasadditionalfeature. Integrationofsocialandphysicalexposomes.Questionbystakeholder:Whyintegration?Answer:To understandmechanisms/pathwaysthatdrivethepatterning/combinationsofexposuresandhow theytogetherandholisticallyaffecthealth. Startingpointistodevelopreliableandvalidmetricstomeasurethecomplexexternalenvironment, comprisedfromsocialandphysicalindicators. Integrationofsocialandphysicaldomainsleadstoanotherstartingpointtowardsaholisticexternal exposomeconcept. SeeAnnex4ondiscussionnotes,oninteractionsessionandondataharmonizationsession.
23 Thissessionrelatedtoknowledgesharingandfeatureprioritization.Inputisvaluableforadaptingthe socialexposomemodel. InteractivesessiononPrioritisingdata(categories) Wewantedtoknowwhichcategoriesofdataareimportantintheviewofstakeholders.Different categoriesofdatawerementioned.Prioritisedcategoriesarementalhealth,fluidintelligence,socio‐ demographicfactors,psychosocialstress,relationshipsandsocialsupport,educationalmobility, healthcharacteristics,learningandteachingconditions,livingconditions. Althoughallhave(some)importance. Reflectionsonthis‘exercise’: - Weshouldhavedonethisatthestartoftheresearchproject. - Combiningresearchandpractitioner’sarguments–interdisciplinaryapproach - Combinetheseprioritieswiththeresearchquestionspriorities. Thissessionprovidedinputforthefeatureprioritizationofoutcomesoftheprojectinordertomatch stakeholder’sexpectationswiththepotentialoutputofthetoolbox. SessiononConceptualmodellingwithsemantictechnologies(MB,Quantia) WithinEqual‐Lifeasemanticknowledgesearchtoolwillbedeveloped:atooltohelpyoufindinga specificdocument.Whatisanontology?Amodelof(someaspectof)theworld.Introducesvocabulary relevanttothedomain.Specifiesmeaning(semantics)ofterms.Formalisedusingsuitablelogic.Shared amongmultipleorganisations. Creatingclasses.Creatingsubclasses.Creatingaclassinstance.Forexample:artistisaclass.Painter andsculptoraresubclassesoftheartistclass.AndLeonardoisapainter(hence,alsoan artist).Leonardoisnotaclass.Andthencreatingadditionalclassinstances:forexample,DaVinci,age, birthdate.Creatingclassinstancesthroughclassproperties,forexample:Leonardopaintsthe Monalisa(painting),MichelangelopaintstheSistineChapel(painting),MichelangelosculptstheDavid (sculpture).AndthenanAItoolcanknowthatLeonardocreatestheMonalisaorthatMichelangelo createstheSistineChapelandtheDavid. Stakeholderhelpneededtoimprove/reflectonthetool. Feedbackstakeholders:searchtheevidenceandbestpractice,taketheoryandimplementthat.Not interestedinwhatisatthebackofthat(website,tooletc).Techniqueversuscontent. Searchengineoptimisation.ConceptualmodelofEqual‐Lifeistheontologyforthetoolprototype.To bevalidatedbystakeholders(e.g.instakeholderforuminHelsinki).HaveapractitionerandITexpert workingsidebyside. Organisingtheinputforthemachinelearningisanimportantstep.Irene:note,therearemore conceptualmodelsinEqual‐Life,thusneedtousethedefinitiondocuments/goalayerdeeper. Suggestion:prepareanexampletofurtherdiscuss/pre‐testwithstakeholders.Startingpointforthe ontologycouldbetheconceptualmodelofWP1.
24 Finalconclusion: ADemonstratorversionofthetoolbox/guidebookwaspreparedandreviewedwithstakeholdersat theWP8co‐creationmeetinginComo.Additionally,anEditorialBoardwasformedtoorganizeand incorporateresultsandfindingsfromtheEqual‐Lifeprojectintothetoolboxandguidebook.This board,adoptingatop‐downapproach,comprisesmemberswithdiverseexpertiseinareassuchas toolsandtraining,knowledgemanagement,guidebookandtoolboxdevelopment,stakeholder expertise,andcommunicationandcoordination.Theirgoalistomaketheproject'soutcomeseasily understandableandrelevanttothepublic. Sessionwasrelatedtoprototypingofthetoolbox. 6 StakeholderforumHelsinki Astakeholderforumwasconductedat7and8September2023inCityHall,Helsinki.Thismeeting wasorganizedbythestakeholderfromtheCityofHelsinki.Therewere14stakeholderspresentand 14representativesoftheEqual‐Lifeproject. Theaimofthemeetingwastogiveinputtowardsthewayofthedevelopmentofpolicy recommendations,towardsthecontentofthetoolboxandgoodpractices/requirementsfortraining toimplementpolicyrecommendationsandtools. Thursday7thSeptember ThemeetingstartedwithashortexplanationofEqual‐Liferesearch,theconceptualframeworkand theprogramofthe2‐dayworkshopsorganizedbyWP8(stakeholderinvolvement)andWP9(toolbox andtraining). Anintroductionwasgivenontheconceptualframework,thetotalityofinternal,socialandphysical exposures,overalifetime,onbetterunderstandingthecausesofandprocessesrelatedtomental healthandcognitivefunctioning,withpotentialmediatingpathways,andaboutprovidingapossibility forinterventionsalongthelifecourse. Expectedresults:earlylifeexposuretourbanplanningrelatedfactors(noise,air),socialfactors (parentalstress,socialeconomic),biomarkersrelatedtoenvironmentalandsocialexposures. Presentationsweregivenon: - Overview preliminary results - Measuring access to public spaces - Presentation on enriching the environmental exposome: road traffic flow prediction and noise modelling - Social exposome - Conceptual framework See for details on these presentations Annex 4. These presentation updated the stakeholders on the state of the art of the work done in Equal-Life. Feedback was given by the stakeholders.
25 Friday8thSeptember Presentationsweregivenbystakeholdersontheirworkrelatedtotopicsthatareaddressedinthe Equal‐Lifeproject. Thesessionsarerelatedtoknowledgesharing.ItgivestheEqual‐Lifeconsortiuminsightinwhichkind ofpolicyimplementationsandpotentialinterventionsareimportant. Toolboxandguidebook(AS,Quantia) ThestakeholderforuminHelsinkiproducedbeneficialfeedbackfortherevisedprototypeofthe toolbox/guidebook. InvolvementofstakeholdersinbroadercommunicationofEqual‐Liferesultsis crucial–andoffered! DiscusseditemsfortheToolboxmodulesarestakeholders,visualization,semanticknowledge exploration,connectionandsharingmodules.InmoredetailtheStakeholdermoduleshouldbean explorativewebsitewithclickableelements.Feedbackhasbeentestedinpreviousstakeholder workshops.Theupdatedwebsiteispresentedinthisworkshopforcomments. Toolsarebroadlydefined,andabroadselectionwillbepresented,butnothostedonthewebsitebut throughlinkagestothe‘owners’ofthespecifictools.Thewebsitewillbeopenforeveryoneandwill haveanexplorativepart. Usestorytelling(workshops)fortheresearchersinordertocollectstories,contentforthewebsite. Suggestions: - Insteadofawebsiteorinadditiontothewebsiteconsiderdevelopinganapp. - LinktootherwebsitesanddashboardssuchasUNICEF. Thissessionprovidedinputontheprototypingofthetoolbox.Thisisalsorelatedtovisualization, knowledgesharing,communicationandtrainingandothersupportneeds. 7 Conclusion/Nextsteps Thischapterhighlightstheoutcomesoftheco‐designworkshopsandstakeholderforathatbrought togetherdiversestakeholderstocollaborativelyshapethedevelopmentstepstowardsusingthe projectresultsforpotentialpolicyimplementations.Andmoreover,forthedevelopmentofatoolbox andguidebook.Thetoolboxaimstoadvanceourunderstandingoftheexposome'sroleinchildren’s mentalhealthchangeduringchildhoodandadolescence,andchildren’scognitivedevelopment.The followingoutcomesdemonstratethesignificanceandpotentialimpactofthiscollaborativeeffort. 1.User‐DefinedRequirementsforthepolicydevelopmentandthetoolbox:Stakeholders,including researchers,healthcareprofessionals,non‐governmentalorganisations,andpolicymakers,actively participatedindefiningspecificrequirementsforpolicyimplementations,thetoolboxand guidebook.Thisinclusiveapproachensuresthatthesegoalsaddresstheuniqueneedsand expectationsofdiverseusergroups.Thecontributionbythestakeholdersincreasedtheknowledge
32 Annex2Co‐designworkshopSkopje Theme3Workingtowardstranslationofscientificresults Additionalanswersbythestakeholders. Weaskedwhattheproblemsareontheinteractionbetweenstakeholdersandscientists.What barriersdoyousee? Somemainanswers: Differenceinlanguagewithinscientificcommunityandincommunicationwithdecision‐ makers. Policymakersaresometimesimpatient,whilescientisttoolittlesenseofurgency. Policymakershaveacertaingoalandlookforinformationsupportingthat.Coherencywithin stakeholdergroupsislackingmightaddtothis. Differentsenseofurgency.Motivationofscientistcandifferfromthoseofpoliticians. Politiciansdon’tlikeprecautionaryprinciples. Poorlistening,hearing,duringallphases.Informationduringprojectsandnotattheend. Additionalbarriersincommunication:changingofpoliticians;differentgoals;educationlevel differences;scienceissometimesnotapplicable;tooexpensive. Timingisrelevantandmightdifferbetweenscientistsandpolicymakers. Contactsarenotalwaysone‐to‐one,andthus‘interference’fromothercontactsmightoccur. Themessageitselfcancreateabarrieraswell.Themeaningofthedatacanbeunclear. Continuousexposure‐responseinformationneedstobeprovidedversusyes/no/no information. Creativesolutions:PRcommunicatorsorjournalists,usemedia. Weneedmediatotransferkeymessagesfromresearchandputmorepressureonpolicy makers. Decisionmakersneeddifferentkindofinformation(yesorno)thanscientists(can)provide. Thresholdsaresetbaseduponvariousarguments(incl.societal)andthusarealwaysbroader thantheempiricalresults. Resultsdonotalwayspleasepolicymakers.Policymakersarenot(always)involvedinresearch studies. Collaborationneedstoaimtosomehowpracticalwisdomandnottoscienceorsolutions. Scientificproposalscouldbeusedasexamplesofsupporttootherstoapplyforresearch projects.So,lesscompetitionbutmorecollaboration. Thereisanadditionalbarrierbetweenscientistsandpoliticiansbecausescientificpapersare publishedinscientificjournalswhicharenotvisibleforpoliticians/policymakers. Thereisaneedforsystematiccapacitybuildingofscientistsontheirroleinpolicymaking processandlearnhowtocommunicatetheirfindingstopoliticians. Researchhastobeproactivetobringmainfindingsinfrontofmessages.
33 Theme4Interventions‘bridgingthegap’asatooltoimprovehealthforall Then,mostofthesessionwasaboutconsideringthefollowingthreephases. Phase1:Visualrepresentationofstepsinaninterventionprocess(e.g.alogicmodel) Phase2:Whereareconsiderationsofsocialinequalitiesandanequityperspectiverelevant? Phase3:Questionsrelatingtosocialinequalitiesandanequityperspective. Theresultsofthediscussioninthesephasesaresummarisedbelow. Phase1:Buildingagenerallogicmodel Inrelationtocontext/monitoring: workingwithmunicipalities,citizens,professionals/experts/researchers,national governments,EU/internationalgovernments,engineersandNGO´s includeexpertsliketeachers‐>askthemaboutproblemsandsolutions+bringthetopicto theiragenda consideringexistingnormsrelatedtothetopic useKPI´s(‘keyperformanceindicators’)toevaluatespecificproblems mentionnational‐levelproblems decidingonatopic(‐>evidence–what´schangeable,what´sintegral?) considerinnovators&Influencesondifferentgenerations raiseawarenessontheinterventiontopic‐>communication Inrelationtoimplementation: raiseawarenessontheinterventiontopic‐>communication Inrelationtoplanning: Identifyneeds/problemintheveryfirststep definetheproblem decideonthetarget(group) identificationofaffectedgroups Includeexpertsliketeachers‐>askthemaboutproblemsandsolutions+bringthetopicto theiragenda Consideringexistingnormsrelatedtothetopic setupindividualgoals interventionsforparentstoeducatethemonthetopic decideonthephysicalspacesanditsaccess decideonthepersonswhoexecutetheintervention Inrelationtoevaluation: Identifyaffectedgroupstoperformtheevaluationwiththem
34 Inter‐evaluationbetweenthedifferentplanningsteps/phases planningasaspiralprocedure(planning‐>implementation‐>evaluation‐>re‐planning‐>re‐ implementation‐>re‐evaluation…) puttingthedefinedprobleminthecentreofevaluation,implementationandplanning Useso‐calledKPI´s(‘keyperformanceindicators’)toevaluatespecificproblems Phase2and3: Inrelationtoanequitylens: Thetextsbelowweretranscribedfromhandwrittennotesfromtheparticipants. Equityperspectivesontheplanningprocess Equityperspectivesonthetargetgroups‐>planningprocess:Dowecoverwithinterventions peoplewithlowersocio‐economicstatus? Aretherecertaingroupsthataredisadvantaged? Who´saffectedbyinterventions?(positiveornegative) Whobenefits? Dotargetgroupsgetdisadvantages? Dopeoplehavetheabilitytoparticipate? Educationindifferentsocialgroups? Adhoccommunicationstrategy?(whendecidesoutcome,howtocommunicateaspartofthe intervention,howtocommunicatedependsonsocialfactors) Moderatingfactors:poorness‐>culturaldifferences,languages) Tolookatinequityisimportant:duringplanning,duringmonitoring,duringevaluation (parentsintervention),assessmentoftargetpopulation,butreallyeverystep Settinggoalsintheavailabilityoftheintervention Decidingonhowit´simplemented,availabilityforeveryone–physical/online Monitoringtheavailabilityoftheintervention(regionandtimely) Outcome,share,helping Theme5Spectrumofprevention Asummaryofbulletpointsofthesuggestionsbytheparticipants: Schoolsettingscanhavebothpositiveandnegativeeffects.E.g.highdemands,dresscode (uniforms),schoolsystem(primarytosecondarytohighschoolselection),socialnorms,self‐ managementrequirements/capabilities Family:education,singleparent,poverty,mentalstatusparents,addiction,violence, crowding,numberofchildren(canbeapositiveeffect),divorce,movinghouse,trauma. Preventiveprograms,suchasDutchprogram“NuNietZwanger”(notpregnantnow). Community,housing,services,neighbourhood(playgrounds,green),socialnetworks.
35 Steppingstonesineachlifephase.Weneedtohaveuniversalknowledge,suchashowmany greenareasareneededforchildren’smentalhealth,whatfactorsarerisky?Thingstofixand no‐go’s. Socialtippingpoints: o 25%ofthepeoplemakeatippingpointoccur. o Examplesaregivenfordifferentsocietalgroups:Anti‐vaxers;Fridaysforfuture;White flight. o Educationofparentsonhowtoimproverelationshipwithchildrenandadolescents. o Forcewillnotwork.Surroundingsareimportant.Smallplans,toobigdoesnotwork. o Collaboratingsocialpsychologists,psychologists,behaviouranalysts–better understandingofhumanbehaviour o Culture,religion,weatherchange,disasters,accidents,newpeoplecomingtothe neighbourhood,crises o Socialnormsaredetrimental,instancesofsuddenchange,significantimplicationsfor welfare o Developmentofcommunicationstrategytopromotepositivebehaviouramong childrenandparents.Children–teachers Trendwatching Forthissessionweusedthemethodofaskingrepetitive‘whyquestions’.Thestartingquestionwas: Wedonotmeetourgoaltoprotectchildrenfrommentalhealthproblems.Why? Whatdoyouseecoming? Children’smentalhealthisgettingworse.Increaseofdepression,ofanxiety.Butistherearealincrease oranincreaseofawareness,analysing,datacollection?Allowingtheconversationtohappenwillhave highernumbers(andnotsomuchincreasetheoutcomes).Medicalisationcouldbeareason.The global,overallpictureversus(differencesin)regionalpictures. Theme6
36 Annex3StakeholderforuminMilano Theme4.2Worldcafésessions Presenter:MK,UniversityofKaiserslautern,CognitiveandDevelopmentalPsychology(online) Titlepresentation:Effectsofenvironmentalexposuresonmentalhealth,well‐being,andcognitionin childrenatthetransitionfromkindergartentoprimaryschool:Conceptofalongitudinalfieldstudy Worldcaféquestions: Westudytherelationshipbetweengreenspace,noise,airpollution,socialfactors,andthe cognitivedevelopmentofchildrenintheperiodbetweenpreschoolandprimaryschool. Fromaninterventionperspectivewhatassociationstoanalysewouldbeofmostinterestfor you Worldcafédiscussion: Thepresentationwasregardedasverygood,partlyabithardtounderstand(particularlythedifferent outcomemeasurementsandhowtheyarerelatedtoeachother).Butthestudypresentedwas regardedasquiteillustrativeaboutwhatEqual‐Lifeisdealingwithandisbettertounderstandthan thecohortdata. Topics/discussionpointsmentionedwere: Identifyqualityaspectsofgreenspacethatareimportanttochildren'sdevelopmentandhow theyrelatetothepreferencesoftheirparents. Greenspacesinresidentialareasaremostimportantforsmallchildren. Studytherelationbetweengreenspaces&qualityoftimespentinthosespaces. Atthatpoint,thegroupdiscussedwhatdefinesthebeneficialqualityofgreenspaces(orotherplaces) inrelationtothementalhealthofchildren.ItwasmentionedthattheWP5definitionof"timespent" and"frequencyspent"isprobablyagoodindicatorforanenvironmentbeneficial/attractivefor children‐betterthandefining"highquality"intermsofthephysicalfeatures(vegetation,water…). "Greenspaceneedsmaintenance"wasmentionedhere. ThemoderatorsmentionedthatthePreschoolstudyisalsointerestedinsocialexposure/factors.The groupdiscussion,therefore,shiftedtowardstheroleofgreenspacefordifferent(socio‐economic) targetgroups. Topicsmentionedherebygroup1andthefollowinggroupswere: IsthereadifferenceintheeffectofgreenspacebetweendifferentSESgroups? Ideaforanintervention:addgreenspacetoschools.SchoolyarditselfisanequalizerofSES differences Thisprovidesequityofaccesstogreenspaceforpupils Moregeneralideasforinterventionfollowed: Interventionshouldprovideequityinarchitecture&urbandesign Bringnatureinsidethe(artificial)citytowardcreativity Also,animalsbringnaturebacktothecity,notthestandardelementsmorecreative
37 Considerthedidacticaspectsofgreenenvironment Designinganinterventionthatislocatedinagreenspace(freeschoollunchinaparkduring summer–Helsinki)=>provideshealth‐beneficialeffectsofgreenspaceandequitytodifferent socio‐economicgroups Besidesgreenspace,somegroups’memberssuggestedconsideringotherexposuresinthepreschool study,namely: Includedigitalexposome Impactofelectromagneticradiationonpreschoolchildren Alsoincludenoise Presenter:CG,CentreforCognitiveScienceTUKaiserslauternGermany(online) Titlepresentation:CausalpathmodellinginEqual‐Life.Whathasbeenandwhatwillbedone? Worldcaféquestion: Howshould(complex)empiricalandstatisticalresultsbecommunicatedtothetargetaudience,and howtopresenttheseresults,toavoidmisconceptions? Worldcafédiscussion: Stakeholdersdiscussedthattheanswerdependsonwhothetargetaudienceisandthatthereare differentlevelsofinformationthatcanbediscussed.Thestakeholdersexpressedinterestin informationonwhattheresultsrepresentandhowtolinkittointerventionsandpractice.Itis importanttoinformonthecontextoftheresults–whatquestionswereasked,whatdataandmethods wereused,whatdatawasmissing,andhowwastheconclusionreached.Itisalsoimportantforthe stakeholderstoknowhowtheycanchangetheoutcomesintherealworld.Regardingtheformof presentingresults,severalformswerementioned:short(written)summaries,interactivesessionswith stakeholders,cartoonsoranimations,andinteractiveonlinematerials.Theresultsmustbeintroduced properly,communicatedinauser‐friendlyandsimpleway,andtherelevancetothetargetaudience shouldbeclear. Presenter:AP,TUDelft,theNetherlands Titlepresentation:Newmethodologicalapproachestomeasuringthephysicalenvironment. Worldcaféquestions: Whatmetrics/indicatorsareyouusinginyourdailypractice(ifatall)toassessaneighbourhood’s walkability/accessibility/encouragementofactivetravelbehaviour,etc.?Whatislacking? Doyouuseanyavailabletools/designguidelinesfromglobalorganizationssuchasWHO,UNHabitat, etc.?Whichones?Whatislacking? Whenitcomestoimprovingchildren’smentalhealthandwell‐being,whichenvironmentalaspectsdo youconsiderthemostimportantandwhy?Onwhatevidencedoyouprioritizethem? Doyouseeanypotentialintheworkwepresentedforyourdailypractice?Whatwouldyouneedto makethishappen? Worldcafédiscussion:
38 Allparticipantsagreedthatthepresentationwasverygood.Alreadyknowingaboutthiskindof researchisan“eye‐opener”.Membersofthisgroupdiscussionwereimpressedwithalldatagathered andwereinterestedinhowtheycanreachdataatasimilarlevelfortheircases.Theywouldbe interestedinreadingreportsandpublicationstoreadmoreaboutitontheEqual‐Lifewebsite. Regardingthetopic“greenareas”theysuggestedtoaddalsolocationsofschools/kindergartens,and playgrounds.Apartfromthefactthatgreenareasarediscusseditisalsoimportantwhatsuchareas offer,whatareactivitiessupportedinsuchplaces(recreation,useofdigitalapps…).Itwassuggested thatalistofaspectsthatspatialplannersshouldconsiderbeforedecidingonnewinterventions. Plannersneedactiveengagementofseveralstakeholdersincludingresidentsandfeedbackfromusers. Itisimportanttomonitorandevaluatetheuseofthegreenareaandmakeimprovementswithtime. Itisimportanttoknowwhatkindofgreenareasweneedinthecity(safety,activities…).Accessibility isimportant,needtoavoidbarriersorcrossthem(railways…).Itshouldbeadynamicprocess.Tools formunicipalitiesareneededtoconsiderthelistofaspectsthattheyshouldconsider. Presenter:JA&LG,UniversityofBremen,Germany Titlepresentation:SocialExposome‐Concept,applicationfields,andimplications Worldcaféquestions: Doesourresearchinspireanypracticalimplicationsinyourwork? Doyouseeanyoptionstointegrateourresearchinyourwork? Doyouseeanygaps,whichshouldbeaddressedinourresearch? Worldcafédiscussion: Doyouseeanygaps,whichshouldbeaddressedinourresearch? OneimportantaspectwithinSocialExposomeshouldbedigitalizationandsocialmedia:Social realityishighlydigitalized,andtheincreasingglobaldigitalizationshouldbeconsideredwhen werefertothesocialenvironment,becauseofthehighinterrelatednessbetweentherealand thevirtual/digitalworlds. o Socialrealityistypicallyperceivedthrough‘digitalfilters’(i.e.useofsmartphones,iPads, socialmedia,etc.) o Theomnipresenceofdigitaldevicesdistractsfromtherealworldandinfluencesour relationships:distraction,lossoffocus(e.g.parentsandlittlechildrenparental investment) o Interactioneffectsbetweentheuseofdigitaladviceandsocioeconomic/educational backgrounddigitalliteracyisneeded WhentalkingabouttheSocialExposomewealsoneedtoconsidercommunityandsocial interactionsattheneighbourhood/districtlevel. o Qualityofneighbourhoodsdiffersalotwithincitiesanddependshighlyonmovementor employmentpatterns. o Whatcanbeobservedisthatsegregationiswantedbytheprivileged residents/communities: ImportantHowtobreakthroughthisaversionandincreasetolerance/opennessto achieveregenerationwithoutlosingbenefits?
39 o Youngfamiliestypicallyareaconstantinneighbourhoodsmaybeincreaseexchange platformsforchildrentoreachacceptancebetweendiversepopulationsinsight& exchangeoflivingpatterns o Lookforoptionstoincreasecommunityinvolvement(participatoryapproach) Whentalkingaboutsocialinteractionsweneedtodefinethemeaningofsocialinteractions: qualityandquantityofinteractions o Inpracticeitseemsthatinteractionsoutsidespecificsettings(e.g.school)definethe atmosphereformeaning,becausehereinteractionslosetheirfunctionas“socialroles” (e.g.teacher,pupil)butcangrowinto‘true’relationships.Thus,to‘improve’interactions, weneedtocreateexchangeoptionsoutsidesettings.Thisunderstandingmayalsohelpto improveneighbourhoods/relationswithinneighbourhoods Formentalhealthsocialinteractionsareofhighrelevance,asweneedtoconsiderboth, perceptionofinteractionsandbehaviourwithininteractions o Toimprovecommunities/neighbourhoodsweneedmoneyand,thus,weneedtoconvince policyanddecision‐makers,weneedtobeoutcome‐related.Butawarenessisalsohighly importantalsocanbeoutcomerelated. Doyouseeanyoptionstointegrateourresearchintoyourwork? Qualityofdata:Concreteoperationalizationoptionsneedtobedefinedtocollectgood&clean datatodrawvalidconclusions Reductionofcomplexitytomakeitfeasibleinthefield–concreteguidelineswouldhelp o E.g.LogicModelforEquityAssessment:nameconcreteevaluationcriteriathataretobe followedinthedevelopmentofinterventions Presenter:MD,TUEindhoven,theNetherlands Titlepresentation:Definingrelevantsettingsbytime‐activity‐soundexposuremapping Worldcaféquestions: Couldyouseethistypeofstudybeingdoneinyourmunicipalityoranotherscaleyouare dealingwithinyourdailywork(neighbourhood/city/province/country)? Doyouseeanybenefittoapplyourresearchinyourdailywork? Knowingthetypesofdatawecollected,whatresearchquestionscometomind?(Inother words,canyougiveanyadditions/suggestionstoourwork?) Worldcafédiscussions: Stakeholdersfoundtheideaofusingbehaviouralpatternsfordatacollectionaninterestingapproach. Theopinionsweredividedonwhetherornottheyseethisstudybeingrepeatedintheirownfieldof work,duetocostsorprivacy.Theinformationthatthestakeholdersthoughtoftobebeneficialfor theirworkwere:SES–noise,qualityoflife–noise,mentalhealth–noise,andthesocialdifferences.It wassuggestedbythestakeholderstoexploretherelationshipbetweendurationandnoise,withthe questionbeing:arelocationswithahighernoiseexposurevisitedforashortertime?Othersuggestions weretoconnectmoredatatotheexistingdatasettoinvestigatethemediationofotherexposures suchasgreenspaceandairqualityandtoincorporatesubjectivesoundexperienceinthefuture. Finally,thestakeholderswouldliketoseesuggestionsforinterventions,guidelinesforwhenasetting is“good”or“bad”andhowtoinformparentsandteachersbetterabouttheeffectsofnoise.
40 Presenter:DK,JožefStefanInstitute,DepartmentofEnvironmentalSciences,Ljubljana,Slovenia Titlepresentation:Children's(mental)healthandparticipatoryresearch:diversityoflevelsofinclusion Worldcaféquestions: Howtotranslatefindingsresultingfromvariousparticipatory/CSactivitiesininterventions? Whichtools(andtheirfeatures)aretobeusedforeffectiveengagementofchildren‐alsoto fostermotivationandconsequentlysustainabilityofactivities? Isthereroomforintegrationofapproachedpresentedintoschoolcurriculum? Howtoassessimpactofactivities/interventionconsideringspecificsofparticipants(children) involved? Howtofostertheupscalingoftheresultsandtheiruptakebypolicyanddecisionmakers? Worldcafédiscussion: Inthebeginningofthediscussion,someoneaskedforanexplanationonwhatisintervention.Itseems thatthemeaningofthewordisnotsufficientlyclear.Discussionwentindirectionthatresultsfrom theresearchareveryoftennotimplementedinpolicies.Decisionmakerslistenattheresultscoming fromresearch,buttheydonotconsidertheseresultsindecisionmaking.Weagreethatenvironmental sensorsforairpollutionandnoiseexposurecangiveveryvaluabledataandtheyshouldbeshared withlocalauthorities.Peoplearescepticalofimplementingsolutionsonchildren’sscience. Onthetopic‐Whichtools(andtheirfeatures)aretobeusedforeffectiveengagementofchildren‐ alsotofostermotivationandconsequentlysustainabilityofactivities,theparticipantsgavevery interestingproposals.Thesetoolscouldbegames,toolsasamusementforchildren,toolsthatmake childrenresponsibletouse,butstill,theyarenotobligatoryforchildren.Itisalsoimportanttoinvolve teachersandchildren,teacherscouldmakeratingfortheirdevelopmentespeciallyindevelopmentof emotionalskills.Someofthesetoolscouldbeincludedineducationprocessandbecomepartof educationcurriculum,especiallyforenvironmentalpollutionandhumanhealth. Weshouldthinktoincludechildrenintheprocessofdevelopmentoftools—co‐creationandco‐design withchildren. Someonegaveideafordevelopmentofapplicationfordailydiary,sowecangetpicturefortime activitypatterns. Howtofostertheupscalingoftheresultsandtheiruptakebypolicyanddecisionmakers? Forthisquestionallparticipantswereveryscepticalthatresultswillbeimplementedinthepolicies. Presenter:KB,senioradvisorchild&adolescentpublichealth,theNetherlands Titlepresentation:MentalHealthintheDutchPublicHealthsector Worldcaféquestions: Areyoumissingitemsinthewishlist? o Well‐beingasabasicconditionatschool o Moretargetgroup‐orientedinterventions o Moreaccessibleinterventions;morepreventiveinterventions o Attentiontosocialandphysicalfactorsinrelationtomentalhealth o Dataabout:‐youngadults;‐migrants;‐lowsocio‐economicstatus o Morequalitativedatainthefieldofmentalhealth. Aretherealreadyqualitativedataaboutmentalhealththatyouwouldsuggest?
41 Whichqualitativedataaremostrelevant? Aretherealreadynationalresearchagenda’sMentalHealthonchildren’smentalhealth? CanEqual‐Lifebeofanysupport? Worldcafédiscussion: Consideringthetime,nodiscussionwasheldonKarin’spresentation. Presenter:ES,CityofHelsinki,Finland Titlepresentation:Implementingevidence‐basedpsychosocialinterventions:anexamplefrom Helsinki,Finland Worldcaféquestions: Whatkindofnationalguidanceisofferedinyourfieldofwork? Howwouldyouapplyyourexperiencesinourwork? Worldcafédiscussion: First,timewastakentoanswerquestionsabouttheIPC‐Aintervention.Forexample,questionsabout theFinnishhealthcaresysteminwhichbasichealthcaretochildrenisprovidedthroughtheschool system,andthattheIPC‐Aisanindividualinterventionthatcanbeprovidedbyanyonewhohas completedthetraining.AnimportantquestionforEmmaishowtogetmanagersintheschooland healthcaresystemtoadopttheIPC‐Aintervention.Theinterventionisalreadyinthenational guidelines;however,thisnationalguidanceisnotenforced.BarriersinFinlandarethatmanagersdo notfeelthatimplementinghealthcareinterventionsispartoftheirjobdescription,asthelawismore focusedonpreventionthaninterventions. Afewexperiencesfromothercountrieswiththisissuewereshared:oneparticipantproposedto informparentsabouttheimportanceofthisinterventionsothattheywillaskschoolstoimplementit. AGermanparticipantproposedtostartscreeningformentalhealthproblemstoshowthemagnitude oftheproblemandcreatemoresupportforimplementingIPC‐Aorotherinterventions.Another Germanparticipantsuggestedthatitmighthelptoconvinceinsurersthattheinterventioniscost‐ efficient,theymightthenlobbyfortheinterventioninschoolsandhealthcaresettings.Aparticipant fromItalyproposedthatitmighthelptoinformuniversitystudentsabouttheimportanceofthis interventionandtheimportancetoworkinterdisciplinary,sothattheymightchangetheeducational andhealthcaresystemsofthefutureandwillseethevalueoftheseinterventionswhentheyenter professionallife.InSloveniatheyencountersimilardifficultiesinimplementinginterventions,their barriersaremainlyalackofresources,people,andmotivation,andwhohastheresponsibilityforthe implementationofinterventionsisnotclear. Presenter:MW,NCJ,theNetherlands Titlepresentation:Yourbrainincontrol?!Universalpreventiontowardsmentalhealthinadolescents Worldcaféquestions: IsthereawayinwhichEqual‐Lifecanhelpmeasuringthechangesweaimforwiththisinterventionat school? weexpecttoseemoreinteractionbetweenstudents,outsideclassesandlunchbreaks
48 Interactionsession:Social‐environmentaldimensionscircle(tapedonthefloor). Ljubljana:includingsocialaspectsandhealthimpactassessmentsinspatialplanning. IntegratingEqual‐Liferesultsintohealthimpactassessmentsregardingmentalhealthandcognitive developmentoutcomes. SessiononDataandharmonizationpresentedbyJS(KI) Apresentationwasgivenonmappingofexistingcontentinthecohortsandharmonization(protocol) andcodebook. ThereareAnalysisteamson:diagnosisteam(mentalhealth),internalizing/externalizing(mental health),cognition,well‐being,andonbiomarkers.Selectionoflifephasewhereoutcomesare(most) relevant. Analysisplan: - Whichresidential(maternal)physicalandsocialexposuresduringpregnancyareassociated withADHDdiagnosis? - Whichresidentialphysicalandsocialexposuresatage0‐3yearsareassociatedwithanADHD diagnosis? - WhatistheassociationbetweenprenatalphysicalandsocialexposomeandanADHD diagnosis?Towhatextentisthisassociationmediatedbypretermbirth/SGA/LBW? - Whatistheassociationbetweenphysicalandsocialexposomeatage0‐3yearsandanAHDH diagnosis?Towhatextentisthisassociationmediatedbystress/sleep(measuredatage0‐3 year)? - Whichresidential(maternal)physicalandsocialexposuresduringpregnancyareassociated withautismdiagnosis? - Whichresidentialphysicalandsocialexposuresatage0‐3yearsoldareassociatedwithan autismdiagnosis? - Whatistheassociationbetweenprenatalphysicalandsocialexposomeandanautism diagnosis? - Whatistheassociationbetweenphysicalandsocialexposomeatage0‐3yearsandan autismdiagnosis?Towhatextentisthisassociationmediatedbystress/sleep(measuredat age0‐3years)?
49 Stakeholders’rolewasparticularlyrelevantandvaluableininterpretingtheanalysisoutcomes.Move awayfromstatisticsintointerpretation(RIVM‐IrenevanKamp). Relatedtodatahandlingandfutureimplementationofresults.
50 Annex5StakeholderforuminHelsinki Summariesofpresentationsanddiscussionsonthefirstday Presentation:Overviewofpreliminaryresults/updates(DS,Zeus) AimofWP1(onmechanisms)istoformulatetheoriesandmechanisms,forhowexposomelinksto mentalhealthandcognitivedevelopmentofchildrenandadolescentsandtounderstandhowstress/ restoration,self‐regulation/copingandsleepmayaffecttheserelationships. Researchquestionsarestudiedin‐depthinsleepandpre‐schoolstudiesandinthecohortstudies (data),enrichedwithnewdata.Examplesofdataavailableinthecohortsand/orareillustrated. Reflectionsfromstakeholders:coping,digitalenvironmentanddaylightare(yet)missinginresearch. Outcomesinfluencetheexposome;thatarrow/linkis‘missing’intheconceptualframework.Thiscan bemodelledthough(inWP7). Thissessionprovidesfeedbackfromthestakeholderstobringfocusintheongoinganalysisofthe results. Presentation:Measuringaccesstopublicspaces(TUD) Thisworkshopconsistedoftwoparts. Part1:Inthefirstpart,weexaminewhichfactorsinfluencepedestrianaccesstopublicspaces andforwhom.Usinganinteractivecardgame,wewillprioritizedifferentfactorsthataffectpedestrian accessibilityanddiscusshowwecanpracticallymeasurethem. Part2:Inthissecondpartwefocusonhowtoassesschildren’saccesstogreenspaceinthecity asaplacetoplay,socialize,beactive,andsoon,ultimatelycontributingtohealthyurban environments.Usinginteractivetools,wewillcollaboratetocreateidealmetricsforchildren’saccess togreenspaceanddiscussseveralmetricsthathavebeenimplementedbyTUDsofar. Relatedtopart1:SDGs,target7:by2030provideuniversalaccesstosafe,inclusiveandaccessible, greenandpublicspacesinparticularforwomenandchildren,olderpersonsandpersonswith disabilities.Howtoidentify,assess,establish/maintaintheseareas?Groupworkonwhatfactorsand forwhom?Andonmeasuringgreenspace. Identifyingandprioritizingurbanfactors:overlapinfactors,importanceofproximity,shadow,safety, lightandamenities.Mostimportantfactorsaretraffic,safety,followedbyenvironmentalfactors, green,shade.Attractivenessandaccessibilityarekey.Otherfactorsmentionedareseasonofthe year,availabilityoftime,education/practice/norms. Mostimportantfactorsoftenarehardtomeasure,whereasthoselessimportantareeasierto measure.Forexample:whatis‘safety’,howtomeasurethis? Reprioritizingspecificallyforparticularpopulationgroups: - forelderlynewfactorswereidentifiedsuchasfreepublictransport,ice‐freeroutes - forchildrenaswellnewfactorswereidentifiedsuchaspeers,distancefromhome, sidewalks/bikelanes
51 - forwomennotmanychangesoccurred - forpersonswithdisabilities:accessibilityismostimportantforthisgroup,aswellas safetransport. Relatedtopart2: Measuringgreenspaceforprimaryschoolagedchildren.Whatinformationwouldyouneed?For example,geographicalsizeanddetail,atneighbourhoodleveland/ornationallevel? Suggestions:addingwearablesinordertocollectdatafromchildren’smovements,addingchildren’s voiceandperceptionongoodenvironments.Anotherpresentationwasoncyclingtowork,addingdata onprivateandpublicland,affordability,subsidizedtravelinformation,bicyclestorageandseasonal maps.Andanotheridea:“Let’splayandmovemoreoutside”,aschildrenarenotgettingoutside anymore.Avarietyofpublicplacesandincreasedattractiveness,voiceofparentsandofchildren.And planandmeasurewiththechildren. TUDelftproposals: - children’sindependentaccesstogreenspace.Itisgoodforchildrentogooutdoors independently;cantheyreacha(green)spacetoplaywithoutcrossingbarriers? - daytodaygreenspaces.Childrengotoschooleveryday,butwhichstreetsdothey passandhowvegetatedarethose? - crowd‐sourcedperceivedgreenspaces.Aredataongreenspaces,suchas OpenStreetMapandsatelliteimages,complete?Ordotheymissgreenspaces? Improvementsuggestions:(social)safetyofplayareas,attractivenessofstreets,addchildren’svoice, useofblackspaceandwhythesearenotused(yet). Thissessionwasrelatedonhowtousecasescenariosrelatedtoaccesstopublicspaces.Thefeedback ofthestakeholdersisenablingTUDtofurtherimprovethemodelling. Presentationonenrichingtheenvironmentalexposome:roadtrafficflowpredictionandnoise modelling(ULEIC) Roadtrafficnoisere‐modellingandincludingincohortstudies(whereneeded).Europeanstandard modellingmethod(CNOSSOS‐EU)isusedtocalculatenoiseexposuresatfacadesofdwellings(and indirectlyofindividuals)frommainroads.Inepidemiologicalstudiesweneedexposuredatafor smaller/minorroads,forindividualdwellings,andthusthisapproachaccordingtotheEnvironmental NoiseDirective(END)isnotideal.Equal‐Lifeistryingtofillinthesegapsbyusingstatisticalmethods withaselectednumberofvariables(theso‐calledgeneralizedlinearmixedeffectsregressionmodel). Suchasroadtype,averagedailytrafficcount,population,numberofterminal/dead‐endroads, nearestmajorroadjunction,gradientoftheroad,connectivitytootherroadtypes,numberofpeople thatcandrivewithin5minutestoaparticularlocation/drivetime.Roadtrafficflowpredictionshave beentestedinUK,Barcelona;nowusedfor3Dnoisemodelling. Questions:Whatistheinfluenceofelectricvehicles?Whataboutlownoiseemissionzones?Dominant sourceandbackgroundnoisedifferperroadtype,thusataresidentialroadyouwillhearrollingnoise whereasatamajorroadthatwillbeenginenoise.
52 Nodataontrees(canopies)isincludedinthemodelling.Mostchallengingisthetemporalaspect (andthusdata)ofroadtraffic. Thissessionprovideknowledgeandwasanexampleofexposomemapping. Socialexposome(NIJZ) Startingpointbeforethepresentationwasthedescriptionoftwomaintoolsforthe toolbox/guidebookplannedfromWP4: 1)Forthetargetgroupofresearchers:ConceptualFrameworkoftheSocialExposomeandits implicationsforresearch.Ashortintroductionwillbegiven,theconceptualframeworkisalready published(Gudi‐Mindermannetal.(2023).Integratingthesocialenvironmentwithanequity perspectiveintotheexposomeparadigm:AnewconceptualframeworkoftheSocialExposome. EnvironmentalResearch.DOI:https://doi.org/10.1016/j.envres.2023.116485). 2)Forthetargetgroupofpolicymakers/urbanplanners/otherstakeholders:LogicModelforEquity ImpactAssessmentanditsimplicationsforinterventionplanningandevaluation.Afterashort introductionaCaseStudyonNoiseLegislationinSloveniawaspresented. Explanationofthesocialexposomeconceptualframework,theintegrationofphysicalandsocial exposomesandthehealthoutcomesandhealthinequalities.Thisisbetestedincohortstudiesand resultsexpectedin/aftersummer2024.Forthetargetgroupofpolicymakers,urbanplanners,public healthauthoritiesandothersisthelogicmodelawaytomakeanequityimpactassessment.Thisisa tooltohelpembedanequityperspectiveintheplanning,implementationandevaluationprocessof universalinterventionstoimprovethebuiltenvironment.Publicationforeseen. Suggestion:includea‘#when?’questionaswell,inadditiontoHow,Who,WhatandWhere. CasestudiesconductedinEqual‐Lifewere(i)reductionofenvironmentalnoiseexposuresinSlovenia, (ii)improvementofbicycleinfrastructureandincreaseofcyclingbehaviourinMacedonia,(iii)mobility hubsand(iv)playareasinUtrecht,theNetherlands.Theenvironmentalnoisecasestudyisfurther explained,seethehandout/ICBENconferencepaperaswell. Inthissessionthestakeholdersgavefeedbackoncasestudiesandamodelonthesocialexposome. Thissessionispartoftheworkplanforimplementationinpractice. Discussiononconceptualframework(INCHES) Theaimofthisdiscussionwastogetapictureof:(i)what'type'ofinformationcanthedifferent stakeholdersapplyintheirwork?,(ii)whichdataorresults(exposures,mediators)arerelevanttothe workofstakeholders?,(iii)dostakeholdersrecognizetheirowndilemmasandquestionsthattheyhave inthefirstresultsanddeviatethisfromwhatstakeholdersexpected,intheirwork?(e.g.whatarethe maincausesandperhapsmediatorsformentalhealthinchildren,accordingtotheEqual‐Life researchersandaccordingtothestakeholders?). Aninteractivegamewasplayedtogetanideawhichkindofexposureswereprioritizedbythe stakeholders:physicalexposures,mediatorsorsocialexposures.Inaddition,stickynoteswere produced.Someoutcomeswere: Socialexposureswerehighlyratedasbeingimportant.
53 Children’svoicesneedtobeandcanbeheard. Whereismostimpacttobeexpected?Inthedecision‐makingsystems.Therechangecanbebest achieved. Thissessionispartoftheworkplanforimplementationinpractice. Summariesofpresentationsanddiscussionsonthesecondday Casestudy:Citycollaborationtrack,Improvingyoungpeople’ssenseofsafetyinthecity(MV) BloombergandHarvardCityLeadershipInitiativesupport,inHelsinki.Publicvaluestatement:enabling asafeandwelcomingenvironmentforchildrenthroughoutthedayisgoodforeachindividualandthe community.Tacklingtheissuebybreakingitdownintosubcausesandidentifyingcomplexitiesbyan interdisciplinaryteam.E.g.lackofsafefreetimeactivitiesfortheyoung,behaviouralissuesamongthe youngatschoolandinthestreets.Growingnumberofconfrontationsbetweengroups,lackofsupport andsenseofbelongingforfamilies. Threeentrypointshavebeenselected: - Servicesaredesignedfor‘average’users o Hobbyplatform o Co‐createserviceswithchildren o Newarea‐basedleadershipmodel o Etc. - Lackofsafefreetimeactivitiesforyoung o Familieshaveknowledgeaboutfreetimepossibilitiesforchildren o Proactiveleisureservicesfindyoungpeoplewithouthobbies o Etc. - Publicspaces(inclschools)areexperiencedasunsafe o Interveningandsolvingeverycaseofbullyingandharassment o Publicspaceimprovementsandnewschoolbuildingareprioritized o Placemakinginterventionswithchildren o Etc. Lessonsareintegratedintoregularworkpractices. ProblemDrivenInteractiveAdaptation(PDIA)process(Harvard)steps:Initialproblemanalysis;Identify actionsteps;Takeaction;Check‐in;Sustainauthorityandlegitimacy;Adaptanditerate. Keyresultsandtakeaways: - Wemanagedtocompletenumeroussimultaneousjoinedinterventionsintheareain matterofmonths.Initialresultsindicatethatantisocialbehaviourhasdecreasedin thearea. - Startwiththeproblemandtherootcauses.Stoppingatthecommonproblemwas worththetime–thisenhancedpeople’sownershipandfromanearlystagethey startedseeingtheirroleinthesolutionstoo.
54 - Makesureyouhavetherightpeopleatthetable.Havingthemandatetobringabout concretechangeandinterventionswascrucial. - Interventionswerebasedonwideparticipationofstakeholdersandasolid knowledgebase. Qualitativedatacollection(anduse)needstobeimproved.Qualitativedatawillbecombinedwith theexisting(quantitative)datainthemunicipality.Thenadecisiononform(at)ofdatacollectionwill betaken. Whathappensnext? - Resultsarecompiledandpresentedtothecityleadership.Decisionsareyettobe madeaboutscaling. - Allcitydivisionsarecommittedtostrengtheningarea‐basedwork,utilizingthetools andprocesstrialedinthearea. - Goodworkcontinuesintheareaandsimilarworkwillbeexpandedtothe surroundingneighborhoods - Keychallengetoaddress:thecoregroupof8peopleputalotoftimeintothisand receivedcoachingthroughouttheprocess–howdoweutilizethemethodsin existingcooperationstructures? Casestudy:infantmentalhealth(TL‐HealthyCitiesCork) Corkcity:Let’sgrowtogether!Variousinterconnectedstrategies:infantmentalhealthandwell‐ being;speechlanguagecommunicationandliteracy. Earlyenvironmentalquality:presentationpreliminaryresults(JS,KarolinskaInst.) Acombinationofbirthcohortdataanddatafromschoolstudies. FAIRcohort:ADHDmostimportantvariables(duringpregnancy)arebirthyear,income,smoking, populationdensity,roadintersectioncloseness,educationoffather,roaddistance,etc.ForAutismthe mostimportantvariablesareincome,greenurbanareas,build‐uparea,roadnoise,greenurbanarea, foreigncitizenship,etc.OtherresultsareavailablefromtheALPINE,PIAMAandWALNUTScohorts. Question:howtocommunicatetheresults? - Communicatetheresultspercohortorallpooledcohorts? - Visualizetheimportanceofthevariables.Oratoptenpresentation. - Infographic - Moreinformationisneeded,forexampleoncausality,howtointerprettherelation betweenthevariableandtheoutcome. - Involvestakeholdersinreviewingpapers!Inordertogivemeaningtoresearch outcomes. PresentationbyLAonPersonallisteningandITdevicesandtheirrelationtolifestyleofadolescentsin theSlovakRiskBehaviouralSurvey ThestudyisbasedonabilateralUS‐Slovakprojecttoevaluatetheimpactofselectedbehavioral, psychological,andsocioeconomicfactorsonadolescenthealthintheBratislavaagglomeration.Special
55 attentionispaidtotheuseofselectedITdevices(TV,PC‐personalcomputers,personalmusicplayers ‐PMPs).Thedatafrom525students(185boys)attending8secondaryschoolsinBratislava,aged15‐ 20yearsarepresented. Themostimportanthealthriskbehaviorsinthestudents’samplewere identified,90.9%ofstudentslistentoPMPonaveragefor405minutesandusemobilephonesfor384 minutesperweek,significantlymoregirls.About50%ofstudentslistentoPMPsmorethan200 minutesaweek.ThosestudentshaveaworselifestylethanthoselisteningtoPMPslessthan200 minutesaweek.AhighpercentageofPCusagehasbeenobserved,especiallyduringtheweekend (72.1%morethanthreehoursperday),andlessinterestinwatchingTV.StudentsusethePCmore thantheirparentsandwatchlessTV,butwhenwatchingit,theycopythebehaviorofbothparents. Thestudypresentsachallengefortheanalysisandforfuturepreventionaswellasintervention activitiestoprotectandpromotethehealthofchildrenandyouth. PlaceStandardToolforChildrenandYoungPeople(JH,CityofGlasgow) ThePlaceStandardtool(PSt)waslaunchedin2015andinresponsetoon‐goingfeedbacka versionforchildrenandyoungpeoplewasco‐producedandpublishedin2022. Thistool providesapracticalsolutiontohelpyoungercommunitiesidentifyinacollaborativeand inclusivemannerwhatworkswellwithintheirplace,whatneedsimprovingandthesolutions toaddressthese.Thetoolismadeupof14placedimensionswhichalignwiththeUNSDGs andthisrelationshipcoupledwiththesuccessfulapplicationofthetoolacrossEuropehasled toaninvitationfromWHOtoPublicHealthScotland(PHS)tohostanewCollaboratingCentre forPlacefrom2024onwards. ThelessonslearnedfromtheEqualLifeProjectwouldbe invaluablecontributiontotheCollaboratingCentre’sprogramme. Thesessionsabovearerelatedtoknowledgesharing.ItgivestheEqual‐Lifeconsortiuminsightin whichkindofpolicyimplementationsandpotentialinterventionsareimportant.
56 Annex6Someexamplesofusedpersonas
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64 InadditiontothemainresearchquestionsinEqual‐Life,inTable3,wehavegatheredquestionsthatarespecifictostudyingtheassociationsbetweendifferent typesofexposomes(e.g.,socialexposome,physicalexposome). Ashomeworkwewouldliketoaskyoutochooseforeachtablethethreequestionsthatyouconsiderthemostrelevant. Youmayhavespecificcriteriathatsupportyourdecision.Pleasetakenoteofyourargumentstoselectyourpreferencequestions. Youmightconsiderargumentsbasedonfeasibilitytomakeinterventions,onthebiggesthealthimpact,oncost‐benefitreasons,onsupportingcurrent projects,oranyotherreason.Youalsohaveargumentswhysomeresearchquestionsarenotgood,notfeasibleormaybenotjustorethical. Doyouconsiderresearchquestionsassucharevaluableforstakeholderslikepolicymakersoronlytheresults? CanyoubringyourfilledinformstoComo. However,wepreferitifyoucouldsendusyourfilledinformstwodaysbeforesowecanprintthemout. InthesessionrelatedtotheEqual‐Lifequestionswewilldiscussyourfeedbackontheresearchquestions.
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