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Data Snack - Rethinking Research Data Management: Inclusive Practices for Every Mind

Büker, Sarah

Abstract

The rapid growth of digital technologies and ever-expanding research data capacities make effective Research Data Management (RDM) more crucial than ever for ensuring transparent, reproducible, and meaningful research. In response, funding agencies, universities, and research institutions have developed RDM frameworks – ranging from FAIR data principles and backup strategies to data management plans. While these concepts are increasingly visible in academic discourse, their practical implementation in everyday research remains a significant challenge. For many researchers, adopting RDM requires not just new technical skills, but also behavioral changes in daily routines. This transition can be particularly difficult for neurodivergent individuals, who represent an estimated 15–20% of the population. Current approaches to RDM training are often abstract, overly perfectionistic, and insufficiently adapted to diverse cognitive styles. For instance, autistic researchers may benefit from highly logical, structured approaches, whereas those with ADHD may require more flexible, open-ended strategies. This talk explores how inclusive RDM practices can be developed to meet these varied needs. By highlighting common barriers, sharing practical solutions, and rethinking teaching concepts, it aims to spark discussion on how to make RDM not only more effective but also more accessible. The goal is to contribute to a more inclusive research culture – one that supports all researchers in engaging meaningfully with data management and ensures that digitalization in research progresses equitably. Disclaimer: This talk was created and given by a neurodivergent person, discribing her own disability to emphasize the need for an inclusive research and RDM culture. It does neither aim to describe all different conditions, nor finding the perfect strategie. Personal insights were shared to start the discussion and to hopefully give a starting point for creating new strategies and lower barriers in RDM.

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CONTACT Sarah Büker Data Scientists @ DSC [email protected] Rethinking Research Data Management Inclusive Practices for Every Mind Who am I? Sarah Büker (she/her) •2019 Biosciences (B. Sc.), University of Osnabrück •2023 Marine Environmental Sciences (M. Sc.), University of Oldenburg •Since May 2024 Data Scientist for Marine & Environmental Sciences @ Data Science Center, University of Bremen 13 November 2025 Rethinking Research Data Management - Inclusive Practices for Every Mind 2 Today‘s topics We are going to talk about data management! Part I: Neurodiversity ❖Definitions & Differences ❖Examples Part II: Neurodiversity & Research Data Management ❖How does neurodiversity effect RDM? Part III: What can we do to lower barriers? ❖Ideas for strategies 13 November 2025 Rethinking Research Data Management - Inclusive Practices for Every Mind 3 Neurodiversity 13 November 2025 Rethinking Research Data Management - Inclusive Practices for Every Mind 4 Neurodiversity vs. Neurodivergent •All brains are different •Neurodiversity: the diversity of all brains •Neurominority or neurodivergent: peripheral areas of the normal distribution Unraveling Neurodiversity: Insights from Neuroscientific Perspectives (H. Goldberg, 2023, Encyclopedia of Social Sciences) 13 November 2025 Rethinking Research Data Management - Inclusive Practices for Every Mind 5 Different neurominorities •Using the term neurodivergent can mean multiple different conditions, depending on the source •Often seen as a more neutral or positive wording •Nevertheless: we have to talk about disabilities… https://www.peacheycounselling.ca/blog/2024/neurodivergence-adult-adhdand-mental-health 13 November 2025 Rethinking Research Data Management - Inclusive Practices for Every Mind 6 Genes associated to brain disorders Peall et. al 2024: Rare genetic brain disorders with overlapping neurological and psychiatric phenotypes. Nature Reviews Neurology, https://doi.org/10.1038/s41582-023-00896-x 13 November 2025 Rethinking Research Data Management - Inclusive Practices for Every Mind 7 Disability! •Societies creates the disabilities •Multiple conditions under the term neurodivergent can be/ are severe disabilities (Germany: Schwerbehinderung) •It is every persons job to lower barrieres and to be inclusive (Germany: § Behindertengleichstellungsgesetz) 13 November 2025 Rethinking Research Data Management - Inclusive Practices for Every Mind 8 Why is it important for RDM? Around 15-20% of the world‘s population are considered neurodivergent! 13 November 2025 Rethinking Research Data Management - Inclusive Practices for Every Mind 9 What can we do? 13 November 2025 Rethinking Research Data Management - Inclusive Practices for Every Mind 16 A Starting Point The following ideas are solely based on a ADHDler‘s brain and not complete. They do not aim to work for every neurodivergent person! 13 November 2025 Rethinking Research Data Management - Inclusive Practices for Every Mind 17 A Starting Point 1. Flexible Structures •To enhance strategies in the long run and to include needs of (new) employees 2. Teaching RDM in small steps, instead of everything all at once •E.g. To-Do-Lists with 5 tasks, none should take longer than 1-5 minutes 3. Emphasize mistakes and imperfections 13 November 2025 Rethinking Research Data Management - Inclusive Practices for Every Mind There is no need to be perfect! 18 Last, but not least: •Gamification and having fun can lead to better experiences •Customizable tools •Try to include special interests, hobbies and strengths of individuals FUN! 13 November 2025 Rethinking Research Data Management - Inclusive Practices for Every Mind 19 13 November 2025 Rethinking Research Data Management - Inclusive Practices for Every Mind 20 Questions? CONTACT Sarah Büker Data Scientists @ DSC [email protected] Thank you for your attendance! www.dsc-ub.de @DSC_unibremen MORE INFO DSC Help-Desk www.dsc-ub.de [email protected]