SOEP-Core - 2016: Deceased individual (A-L1, PAPI, with reference to variables)

DIW Berlin / SOEP (Ed.) Research Report SOEP-Core - 2016: Deceased individual (A-L1, PAPI, with reference to variables) SOEP Survey Papers, No. 660 Provided in Cooperation with: German Institute for Economic Research (DIW Berlin) Suggested Citation: DIW Berlin / SOEP (Ed.) (2019) : SOEP-Core - 2016: Deceased individual (AL1, PAPI, with reference to variables), SOEP Survey Papers, No. 660, Deutsches Institut für Wirtschaftsforschung (DIW), Berlin This Version is available at: https://hdl.handle.net/10419/195370 Standard-Nutzungsbedingungen: Die Dokumente auf EconStor dürfen zu eigenen wissenschaftlichen Zwecken und zum Privatgebrauch gespeichert und kopiert werden. Sie dürfen die Dokumente nicht für öffentliche oder kommerzielle Zwecke vervielfältigen, öffentlich ausstellen, öffentlich zugänglich machen, vertreiben oder anderweitig nutzen. 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If the documents have been made available under an Open Content Licence (especially Creative Commons Licences), you may exercise further usage rights as specified in the indicated licence. https://creativecommons.org/licenses/by-sa/4.0/ 660 SOEP Survey Papers Series A – Survey Instruments (Erhebungsinstrumente) SOEP — The German Socio-Economic Panel at DIW Berlin 2019 SOEP-Core – 2016: Deceased Individual (A-L1, PAPI, with Reference to Variables) SOEP Group The German Socio-Economic Panel Running since 1984, the German Socio-Economic Panel (SOEP) is a wide-ranging representative longitudinal study of private households, located at the German Institute for Economic Research, DIW Berlin. The aim of the SOEP Survey Papers Series is to thoroughly document the survey’s data collection and data processing. The SOEP Survey Papers is comprised of the following series: Series A – Survey Instruments (Erhebungsinstrumente) Series B – Survey Reports (Methodenberichte) Series C – Data Documentation (Datendokumentationen) Series D – Variable Descriptions and Coding Series E – SOEPmonitors Series F – SOEP Newsletters Series G – General Issues and Teaching Materials The SOEP Survey Papers are available at http://www.diw.de/soepsurveypapers Editors: Dr. Jan Goebel, DIW Berlin Prof. Dr. Stefan Liebig, DIW Berlin and Universität Bielefeld Dr. David Richter, DIW Berlin Prof. Dr. Carsten Schröder, DIW Berlin and Freie Universität Berlin Prof. Dr. Jürgen Schupp, DIW Berlin and Freie Universität Berlin Please cite this paper as follows: SOEP Group, 2019. SOEP-Core – 2016: Deceased Individual (A-L1, PAPI, with Reference to Variables). SOEP Survey Papers 660: Series A – Survey Instruments (Erhebungsinstrumente). Berlin: DIW Berlin/SOEP This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License. © 2019 by SOEP ISSN: 2193-5580 (online) DIW Berlin German Socio-Economic Panel (SOEP) Mohrenstr. 58 10117 Berlin Germany [email protected] The German Socio Economic Panel at DIW Berlin SOEP-Core – 2016: Deceased Individual (A-L1, PAPI, with Reference to Variables) SOEP Group 2019 The variable names mentioned in this document belong to a collection of datasets, which is released with doi:10.5684/soep.v34. SOEP Core study Deceased Individual 2016 Reading Aid This representation of the questionnaire contains the same informations as the portal paneldata.org. interviewer instruction answer options in0green: dataset0name variable0name variable0label in0blue: identifier0 for0filter in0blue: filter0with0 condition grey0bar: open0or numeric answer question0text Q72 Now we would like to know something about you personally. Were you born in Germany? This refers to Germany or the Federal Republic of Germany or the German Democratic Re‐ public in the national borders at the time of your birth. Yes 1 No 2 No answer -1 Q72;lsta1 bio l0013 born in Germany Q72;LSTA1=2 Q73 What country were you born in? Please enter the current name! Q73;lsta2 bio l0016 Country Of Birth question number Here, in addition to the question number,question text,interviewer instructions, and answer options, you find printed in green the file name and the variable name with the variable label, which contains information from the question. If you see rows of green lines below the answer option, the questionnaire defines serveral variables or informations are stored in more than one data set. The routing by filters is depicted in blue. Each variable is preceded by an identifier (which generally contains the question number, marked here with a yellow dotted line), which is given, if the variable is used in filters in a subsequent question. Such filters are usually shown (as gatekeepers) at the beginning of the question. This reading aid does not cover a few exceptional cases: If the filter (as gatekeeper) only affects one of serveral variables for a question, the filter is printed in blue behind the variable. There you will also find a “go to” command in the form 2 @ Q73. Here, the questionnaire skips to question 73 if the variable results in value of 2. Phrases that are not alreday translated in English are displayed in German and preceded by [de]. SOEP Survey Papers 660 2 SOEP Core study Deceased Individual 2016 Intro First of all we, the team of “Living in Germany”, want to express our deepest regret for the loss of your family member. For many people it is very hard to talk to stranges about dying and death. Nevertheless because of the inadequate knowledge in the scientific community about this topic we would like to aks a couple of questions. We would like to know more about the last phase of your relatives live. Therefor we ask you kindly • to answer our representative the following questions • or carfully fill out this questionnaire by yourself. 0Please enter according to address protocol. Household number First name Please print Person number 0:pnr bgvp bgpnr Serial Person Number 1Please state the first name, sex, and year of birth of the deceased person: First name of the deceased person Please print 1:vname bgvp bgvpnr lfd. nr. verstorbene person Sex and year of birth: Male 1 Female 2 1:vsex bgvp bgvp0101 sex person died 1:vsex vpl dl001 Gender Year of birth: 1:vgebj bgvp bgvp0102 year of birth person died 1:vgebj vpl dl002 Geburtsjahr verstorbene Person 2What was your family relationship with the person passed away? He / She was … my mother / my father 1 my spouse / life partner 2 my daughter / my son 3 other person 4 Other person: SOEP Survey Papers 660 3 SOEP Core study Deceased Individual 2016 3How old was your relative when he/she passed away? Years 3:valt bgvp bgvp03 age of person died 3:valt vpl dl005 age of person died 4Did the deceased person live in this household? No 2 Yes 1 4:vinhh bgvp bgvp04 person died lived in local hh? 4:vinhh vpl dl006 Im Haushalt gelebt 5Do you know whether he/she ever participated the study “Living in Germany”? Yes, participated 1 No, did not participate 2 Do not know 3 5:vlid bgvp bgvp05 person died was SOEP attendant 5:vlid vpl dl007 person died was SOEP attendant 6What was the main home environment the person who died lived in the last years? Allone in own household 1 Together with spouse / partner in private household 2 Together with other family members in private househohld 3 Accommodation geared to the needs of senior citizens (e.g. assisted living) 4 Retirement home / Nursing home 5 Clinic, hospital 6 Other environment 7 Other: 7Where did he/she live? Here in house 1 In the neighborhood 2 In a close distance (to reach on food within 1 hour) 3 In a further distance in Germany 4 In a foreign country 5 7:vleb03 bgvp bgvp07 focus of deceased person’s life 7:vleb03 vpl dl009 focus of deceased person’s life 8Within the last 12 month of his/her life: How often did you have personal contact to the deceased person? (personally, by telephone, by writing) Every day 1 At least once a week 2 At least once a month 3 Rarer 4 Never 5 8:vkont bgvp bgvp08 personal contact to deceased in last year 8:vkont vpl dl010 Kontakt letzte 12 Mon. SOEP Survey Papers 660 4 SOEP Core study Deceased Individual 2016 9Where did he/she decease? At home 1 In another private household 2 In a hospital 3 In a retirement home / nursing home 4 In a hospice 5 Another place 6 Do not now 7 Another place: 10 Can you tell me what the cause of death was? Multiple responses possible! Heart attack 1 Cardiovascular disease 1 Cancer 1 Stroke 1 Severe infectious disease (such as pneumonia, flu) 1 Gastrointestinal disease 1 Respiratory illness 1 Accident 1 Other 1 Do not know 1 10:vurs01 bgvp bgvp1001 cause of death: heart attack 10:vurs01 vpl dl012 cause of death: heart attack 10:vurs02 bgvp bgvp1002 cause of death: cardiovascular disease 10:vurs02 vpl dl013 cause of death: cardiovascular disease 10:vurs03 bgvp bgvp1003 cause of death: cancer 10:vurs03 vpl dl014 cause of death: cancer 10:vurs04 bgvp bgvp1004 cause of death: epileptic stroke 10:vurs04 vpl dl015 cause of death: epileptic stroke 10:vurs05 bgvp bgvp1005 cause of death: sever infectious disease 10:vurs05 vpl dl016 cause of death: sever infectious disease 10:vurs06 bgvp bgvp1006 cause of death: gastrointestinal tract disease 10:vurs06 vpl dl017 cause of death: gastrointestinal tract disease 10:vurs07 bgvp bgvp1007 cause of death: respiratory disease 10:vurs07 vpl dl018 cause of death: respiratory disease 10:vurs08 bgvp bgvp1008 cause of death: accident 10:vurs08 vpl dl019 cause of death: accident 10:vurs09 bgvp bgvp1009 cause of death: other 10:vurs09 vpl dl020 cause of death: other Other reason: 10:vurs10 bgvp bgvp1010 cause of death unknown 10:vurs10 vpl dl021 cause of death unknown SOEP Survey Papers 660 5 SOEP Core study Deceased Individual 2016 11 Had the person who passed away deposited one or some of the following documents? Yes No Don’t know A testament 1 2 3 A living will (with instruction on medical care)? 1 2 3 A power of attorney (in case of loss of capacity for consent) 1 2 3 A living will with instructions on use of death-delaying procedures 1 2 3 11:vdok01 bgvp bgvp1101 left last will 11:vdok01 vpl dl022 left last will 11:vdok02 bgvp bgvp1102 left living will 11:vdok02 vpl dl023 left living will 11:vdok03 bgvp bgvp1103 left provisional power or attorney 11:vdok03 vpl dl024 left provisional power or attorney 11:vdok04 bgvp bgvp1104 left living will with instructions on use of death-delaying procedures 11:vdok04 vpl dl025 left living will with instructions on use of death-delaying procedures 12 Did the person who died had a reduced mental capacity? Yes 1 No 2 Don’t know 3 12:vleist bgvp bgvp12 limited mental capacity 12:vleist vpl dl026 Geistige Einschraenkung 13 How was the state of health of the person who passed away three month before death? Very good 1 Good 2 Satisfactory 3 Poor 4 Bad 5 13:vges01 bgvp bgvp13 Gesundheitszustand 3 Monate vor Tod 13:vges01 vpl dl027 Gesundheitszustand 3 Monate vor Tod 14 Was the deceased in need of assistance or care three months before he/she died? Yes 1 No 2 14:vpfleg bgvp bgvp14 Pflegebeduerftigkeit 3 Monate vor Tod 14:vpfleg vpl dl028 Pflegebeduerftigkeit 3 Monate vor Tod SOEP Survey Papers 660 6